Caregiving and Parenting for Chronic Pediatric Diseases

Articles published in 2021 in this theme: 18 (scroll down to load remaining articles)

2021

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Digital Interventions to Improve Health Literacy Among Parents of Children Aged 0 to 12 Years With a Health Condition: Systematic Review

Evalotte Mörelius, Suzanne Robinson, Diana Arabiat, Lisa Whitehead

J Med Internet Res 2021 (Dec 22); 23(12):e31665

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Initial Feasibility of the “Families Moving Forward Connect” Mobile Health Intervention for Caregivers of Children With Fetal Alcohol Spectrum Disorders: Mixed Method Evaluation Within a Systematic User-Centered Design Approach

Christie Lynn McGee Petrenko, Carson Christine Kautz-Turnbull, Alicia Rose Roth, Jennifer Elizabeth Parr, Cristiano Tapparello, Utku Demir, Heather Carmichael Olson

JMIR Form Res 2021 (Dec 02); 5(12):e29687

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Effectiveness of a Mobile Device–Based Resilience Training Program in Reducing Depressive Symptoms and Enhancing Resilience and Quality of Life in Parents of Children With Cancer: Randomized Controlled Trial

Yuanhui Luo, Wei Xia, Ankie Tan Cheung, Laurie Long Kwan Ho, Jingping Zhang, Jianhui Xie, Pin Xiao, Ho Cheung William Li

J Med Internet Res 2021 (Nov 29); 23(11):e27639

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Internet-Administered Cognitive Behavioral Therapy for Common Mental Health Difficulties in Parents of Children Treated for Cancer: Intervention Development and Description Study

Joanne Woodford, Paul Farrand, Josefin Hagström, Li Hedenmalm, Louise von Essen

JMIR Form Res 2021 (Jul 22); 5(7):e22709

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Self-Care Needs and Technology Preferences Among Parents in Marginalized Communities: Participatory Design Study

Weichao Yuwen, Miriana Duran, Minghui Tan, Teresa M Ward, Sunny Chieh Cheng, Magaly Ramirez

JMIR Pediatr Parent 2021 (Jun 22); 4(2):e27542

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Parents' Perspectives on a Computer Game–Assisted Rehabilitation Program for Manual Dexterity in Children With Cerebral Palsy: Qualitative Analysis of Expectations, Child Engagement, and Benefits

Anuprita Kanitkar, Sanjay Tejraj Parmar, Tony J Szturm, Gayle Restall, Gina Rempel, Nariman Sepehri

JMIR Rehabil Assist Technol 2021 (May 31); 8(2):e24337

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Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial

Anna M Hood, Heather Strong, Cara Nwankwo, Yolanda Johnson, James Peugh, Constance A Mara, Lisa M Shook, William B Brinkman, Francis J Real, Melissa D Klein, Rogelle Hackworth, Sherif M Badawy, Alexis A Thompson, Jean L Raphael, Amber M Yates, Kim Smith-Whitley, Allison A King, Cecelia Calhoun, Susan E Creary, Connie M Piccone, Aimee K Hildenbrand, Steven K Reader, Lynne Neumayr, Emily R Meier, Amy E Sobota, Sohail Rana, Maria Britto, Kay L Saving, Marsha Treadwell, Charles T Quinn, Russell E Ware, Lori E Crosby

JMIR Res Protoc 2021 (May 21); 10(5):e27650

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Feasibility of a Voice-Enabled Medical Diary App (SpeakHealth) for Caregivers of Children With Special Health Care Needs and Health Care Providers: Mixed Methods Study

Emre Sezgin, Garey Noritz, Simon Lin, Yungui Huang

JMIR Form Res 2021 (May 11); 5(5):e25503

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Parent Experiences With Electronic Medication Monitoring in Pediatric Asthma Management: Qualitative Study

Kristin Kan, Sara Shaunfield, Madeleine Kanaley, Avneet Chadha, Kathy Boon, Carolyn C Foster, Luis Morales, Patricia Labellarte, Deneen Vojta, Ruchi S Gupta

JMIR Pediatr Parent 2021 (Apr 23); 4(2):e25811

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Telehealth Diabetes Prevention Intervention for the Next Generation of African American Youth: Protocol for a Pilot Trial

Abigail Gamble, Bettina M Beech, Breanna C Wade, Victor D Sutton, Crystal Lim, Shanda Sandridge, Michael A Welsch

JMIR Res Protoc 2021 (Mar 31); 10(3):e25699

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Conversational Agents as Mediating Social Actors in Chronic Disease Management Involving Health Care Professionals, Patients, and Family Members: Multisite Single-Arm Feasibility Study

Tobias Kowatsch, Theresa Schachner, Samira Harperink, Filipe Barata, Ullrich Dittler, Grace Xiao, Catherine Stanger, Florian v Wangenheim, Elgar Fleisch, Helmut Oswald, Alexander Möller

J Med Internet Res 2021 (Feb 17); 23(2):e25060

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The Efficacy of WeChat-Based Parenting Training on the Psychological Well-being of Mothers With Children With Autism During the COVID-19 Pandemic: Quasi-Experimental Study

Guihua Liu, Shuo Wang, Jinhua Liao, Ping Ou, Longsheng Huang, Namei Xie, Yingshuang He, Jinling Lin, Hong-Gu He, Rongfang Hu

JMIR Ment Health 2021 (Feb 10); 8(2):e23917

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Experiences of Young People and Their Caregivers of Using Technology to Manage Type 1 Diabetes Mellitus: Systematic Literature Review and Narrative Synthesis

Nicola Brew-Sam, Madhur Chhabra, Anne Parkinson, Kristal Hannan, Ellen Brown, Lachlan Pedley, Karen Brown, Kristine Wright, Elizabeth Pedley, Christopher J Nolan, Christine Phillips, Hanna Suominen, Antonio Tricoli, Jane Desborough

JMIR Diabetes 2021 (Feb 02); 6(1):e20973

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Willingness to Adopt mHealth Among Chinese Parents During the COVID-19 Outbreak: Cross-sectional Questionnaire Study

Siyu Yang, Yijing Chen, Leshan Zhou, Yuting Huang, Jiahui Dai

JMIR Mhealth Uhealth 2021 (Jan 27); 9(1):e23155

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A Mobile Health Platform for Self-Management of Pediatric Cystic Fibrosis: Qualitative Study of Adaptation to Stakeholder Needs and Integration in Clinical Settings

Sarah B Rutland, Rikard Palmer Bergquist, Andreas Hager, Robin Geurs, Cathy Mims, Hector H Gutierrez, Gabriela R Oates

JMIR Form Res 2021 (Jan 26); 5(1):e19413

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A Mobile App–Based Intervention Program for Nonprofessional Caregivers to Promote Positive Mental Health: Randomized Controlled Trial

Carme Ferré-Grau, Laia Raigal-Aran, Jael Lorca-Cabrera, Teresa Lluch-Canut, Maria Ferré-Bergadà, Mar Lleixá-Fortuño, Montserrat Puig-Llobet, Maria Dolores Miguel-Ruiz, Núria Albacar-Riobóo

JMIR Mhealth Uhealth 2021 (Jan 22); 9(1):e21708

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Understanding Parents’ Experiences When Caring for a Child With Functional Constipation: Interpretive Description Study

Alison P Thompson, Shannon E MacDonald, Eytan Wine, Shannon D Scott

JMIR Pediatr Parent 2021 (Jan 20); 4(1):e24851

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Monitoring Adherence Rate to Growth Hormone Therapy and Growth Outcomes in Taiwanese Children Using Easypod Connect: Observational Study

Pen-Hua Su, Chen Yang, Mei-Chyn Chao, Chung-Lin Chiang

JMIR Pediatr Parent 2021 (Jan 15); 4(1):e14774

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