TY  - JOUR
AU  - Yuwen, Weichao
AU  - Duran, Miriana
AU  - Tan, Minghui
AU  - Ward, Teresa M
AU  - Cheng, Sunny Chieh
AU  - Ramirez, Magaly
PY  - 2021
DA  - 2021/6/22
TI  - Self-Care Needs and Technology Preferences Among Parents in Marginalized Communities: Participatory Design Study
JO  - JMIR Pediatr Parent
SP  - e27542
VL  - 4
IS  - 2
KW  - asthma
KW  - caregiving
KW  - self-care
KW  - parents
KW  - qualitative research
KW  - culturally appropriate technology
KW  - minority groups
KW  - marginalization
AB  - Background: Ten million parents provide unpaid care to children living with chronic conditions, such as asthma, and a high percentage of these parents are in marginalized communities, including racial and ethnic minority and low-income families. There is an urgent need to develop technology-enabled tailored solutions to support the self-care needs of these parents. Objective: This study aimed to use a participatory design approach to describe and compare Latino and non-Latino parents’ current self-care practices, needs, and technology preferences when caring for children with asthma in marginalized communities. Methods: The participatory design approach was used to actively engage intended users in the design process and empower them to identify needs and generate design ideas to meet those needs. Results: Thirteen stakeholders participated in three design sessions. We described Latino and non-Latino parents’ similarities in self-care practices and cultural-specific preferences. When coming up with ideas of technologies for self-care, non-Latino parents focused on improving caregiving stress through journaling, daily affirmations, and tracking feelings, while Latino parents focused more on relaxation and entertainment. Conclusions: Considerations need to be taken beyond language differences when developing technology-enabled interventions for diverse populations. The community partnership approach strengthened the study’s inclusive design. 
SN  - 2561-6722
UR  - https://pediatrics.jmir.org/2021/2/e27542
UR  - https://doi.org/10.2196/27542
UR  - http://www.ncbi.nlm.nih.gov/pubmed/34156343
DO  - 10.2196/27542
ID  - info:doi/10.2196/27542
ER  -