Caregiving and Parenting for Chronic Pediatric Diseases

Articles published in this theme: 119 (scroll down to load remaining articles)

2026

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Translation and Validation of the Japanese Version of the University of Washington Caregiver Benefit Scale and the Perception of Benefit-Finding by Caregivers of Children With Spina Bifida and Related Factors: Mixed Methods Research and Comparative Analysis

Xinmiao Cui, Tae Kawahara, Akemi Yamazaki

JMIR Pediatr Parent 2026 (Mar 17); 9:e74069

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Novel Web-Based Technology to Promote Goal-Setting in Complex Chronic Illness: Randomized Controlled Trial

Jody Lin, Bernd Huber, Ofra Amir, Shiri Assis-Hassid, Sebastian Gehrmann, Krzysztof Gajos, Barbara Grosz, Lee Sanders

JMIR Hum Factors 2026 (Feb 20); 13:e70402

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The Lived Experiences of Children Who Have Undergone Kidney Replacement Therapy and Their Families: Protocol for a Qualitative Systematic Review

Kenji Takao, Maki Fujitsuka, Shingo Ueki, Tomoyuki Sakai

JMIR Res Protoc 2026 (Jan 12); 15:e77725

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Increasing Use of a Postpartum and Newborn Chatbot among Birthing Individuals and Caregivers: Development and Implementation Study

Jessica N Rivera Rivera, Marjanna Smith, Shrey Mathur, Katarina E AuBuchon, Angela D Thomas, Hannah Arem

JMIR Pediatr Parent 2026 (Jan 09); 9:e81844

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Facilitating Communication With Children and Young Adults With Special Health Care Needs Through a Web-Based Application: Qualitative Descriptive Study

Jessica R Hanks, Ashley M Hughes, Safura Sultana, Ryan Klute, Kyle Formella, Connor Flynn, Allison Wallenfang, Divya Krishnakumar, Masah Mourad, Yoonje Cho Morse, Matthew J Mischler

JMIR Pediatr Parent 2026 (Jan 06); 9:e76512

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2025

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Analysis of Cough Factors and Quality of Life Score Among Children With Protracted Bacterial Bronchitis: Cross-Sectional Study

Haonan Ning, Wenyu Zheng, Jinghui Zhang, Fuhai Li, Nana Qiao

JMIR Pediatr Parent 2025 (Dec 19); 8:e82887

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Health Technologies and Infrastructures for Supporting Home-Based Pediatric Palliative Care: Scoping Review

Simen Alexander Steindal, Anette Winger, Kirsti Riiser, Erik Bjørnerud, Weiqin Chen, Heidi Holmen

J Med Internet Res 2025 (Dec 08); 27:e70687

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Benefits and Barriers of Caregiver App Engagement for Supporting Diverse Children With Asthma: Mixed Methods Study

Kandia Lewis, Cynthia M Zettler-Greeley, Amy Milkes, Kathryn V Blake

JMIR Pediatr Parent 2025 (Dec 04); 8:e69755

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Enhancing Adherence and Mental Well-Being in Pediatric Growth Hormone Therapy: Feasibility Prospective Observational Study of a Family-Centered Digital Companion

Antonio de Arriba Muñoz, Amalia M García-Durán, Patricia Sanz-Aznar, Silvia Quer-Palomas, Ioannis Bilionis, Alba Xifra-Porxas, Joia Nuñez, Ricardo C Berrios, Luis Fernández-Luque

JMIR Pediatr Parent 2025 (Oct 27); 8:e67102

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A Triple Perspective on the Triple Visit: Protocol for a Mixed Methods Evaluation of the Implementation of a Pediatric Multidisciplinary Clinic Model for Inflammatory Bowel Disease

Aisling Curtin Wach, Yasmin Lalani, Alexandra Christofides, Pete Wegier, Lara Hart

JMIR Res Protoc 2025 (Sep 12); 14:e72670

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Open Online Courses for Informal Carers: Systematic Integrative Review

Kalya Win Aung, Angela Kibia, Juliana Onwumere

J Med Internet Res 2025 (Aug 28); 27:e72808

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Empowering Caregiver Well-Being With the Adhera Caring Digital Program for Family Caregivers of Children Living With Type 1 Diabetes: Mixed Methods Feasibility Study

Antonio de Arriba Muñoz, Elisa Civitani Monzon, Maria Pilar Ferrer, Marta Ferrer-Lozano, Silvia Quer-Palomas, Joia Nuñez, Alba Xifra-Porxas, Francesca Aimée Mees Mlatiati, Ioannis Bilionis, Ricardo C Berrios, Luis Fernández-Luque

JMIR Pediatr Parent 2025 (Jul 09); 8:e66914

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Examination of Chronic Sorrow Among Parents of Children With Disabilities: Cross-Sectional Study

Samaa Al Anazi, Naseem Alhujaili, Dina Sinqali, Ftoon Al Heej, Lojain Al Somali, Samaher Khayat, Talah Ramboo

JMIR Pediatr Parent 2025 (Jul 02); 8:e65754

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Exploring the Acceptance and Opportunities of Using a Specific Generative AI Chatbot to Assist Parents in Managing Pediatric Rheumatological Chronic Health Conditions: Mixed Methods Study

Cheryl W Y Lau, Klaudia Kupiec, Polly Livermore

JMIR Pediatr Parent 2025 (Jul 01); 8:e70409

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Evaluating the Impact of Pediatric Digital Mental Health Care on Caregiver Burnout and Absenteeism: Longitudinal Observational Study

Darian Lawrence-Sidebottom, Kelsey McAlister, Aislinn Brenna Beam, Rachael Guerra, Amit Parikh, Monika Roots, Donna McCutchen, Landry Goodgame Huffman, Jennifer Huberty

JMIR Pediatr Parent 2025 (Jun 27); 8:e67149

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Exploring Service Users’ Experiences of a Community-Based Intervention to Improve Follow-Up at Bharatpur Eye Hospital in Nepal: Qualitative Study

Manisha Shrestha, Gopal Bhandari, Sadhan Bhandari, Gudlavalleti Venkata Satyanarayana Murthy, Ruchi Priya, Binod Pandey, Daya Shankar Chaudhary, Puspa Giri, Sureshkumar Kamalakannan, Operational Research Capacity Building Study Group

JMIR Pediatr Parent 2025 (Jun 25); 8:e65023

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Optimizing a Personalized Health Approach for Virtually Treating High-Risk Caregivers of Children With Neurogenetic Conditions (Project WellCAST): Protocol for a Randomized Controlled Trial

Bridgette Kelleher, Kaleb Emerson, Lyndsey N Graham, Veronika Vozka, Anne Wheeler, William Fadel, Daniel Foti, Isha Metzger, Mandy Rispoli, Wendy Machalicek, Laurie McLay, Sean Lane, Wei Siong Neo, Allie Carter, Lisa Brown, Jennifer Brown, Laura Lee McIntyre, Elizabeth Salwitz, Gloria Dietz, Riley Naughton, Katlyn Peek, Nicole Hollins, Emma Woodford

JMIR Res Protoc 2025 (Jun 25); 14:e64360

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Association Between the Parenting Competence and Quality of Life of Family Caregivers of Children Aged 0-3 Years: Cross-Sectional Study

Wei He, Le-shan Zhou, Long-yi Hu

JMIR Pediatr Parent 2025 (Jun 16); 8:e67872

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Perspectives of Adolescents and Young Adults With Inflammatory Bowel Disease on a Biopsychosocial Transition Intervention: Qualitative Interview Study

Brooke Allemang, Ashleigh Miatello, Mira Browne, Melanie Barwick, Pranshu Maini, Joshua Eszczuk, Chetan Pandit, Tandeep Sadhra, Laura Forhan, Natasha Bollegala, Nancy Fu, Kate Lee, Emily Dekker, Irina Nistor, Sara Ahola Kohut, Laurie Keefer, Anne Marie Griffiths, Thomas D Walters, Samantha Micsinszki, David R Mack, Sally Lawrence, Karen I Kroeker, Jacqueline de Guzman, Aalia Tausif, Claudia Tersigni, Samantha J Anthony, Eric I Benchimol

JMIR Pediatr Parent 2025 (Apr 02); 8:e64618

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Exploring Stress and Stress-Reduction With Caregivers and Clinicians in the Neonatal Intensive Care Unit to Inform Intervention Development: Qualitative Interview Study

Kristin Harrison Ginsberg, Jane Alsweiler, Jenny Rogers, Phoebe Ross, Anna Serlachius

JMIR Pediatr Parent 2025 (Apr 02); 8:e66401

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