Caregiving and Parenting for Chronic Pediatric Diseases

Articles published in 2020 in this theme: 13 (scroll down to load remaining articles)

2020

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Perspective of an International Online Patient and Caregiver Community on the Burden of Spasticity and Impact of Botulinum Neurotoxin Therapy: Survey Study

Atul T Patel, Theodore Wein, Laxman B Bahroo, Ophélie Wilczynski, Carl D Rios, Manuel Murie-Fernández

JMIR Public Health Surveill 2020 (Dec 07); 6(4):e17928

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Perspectives of Child Life Specialists After Many Years of Working With a Humanoid Robot in a Pediatric Hospital: Narrative Design

Tanya Beran, Jacqueline Reynolds Pearson, Bonnie Lashewicz, Sandy Baggott

J Med Internet Res 2020 (Nov 19); 22(11):e23496

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Facebook Support Groups for Rare Pediatric Diseases: Quantitative Analysis

Sarah Catrin Titgemeyer, Christian Patrick Schaaf

JMIR Pediatr Parent 2020 (Nov 19); 3(2):e21694

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Pediatric Asthma Action Plans: National Cross-Sectional Online Survey of Parents' Perceptions

Karen H Pletta, Bradley R Kerr, Jens C Eickhoff, Gail S Allen, Sanjeev R Jain, Megan A Moreno

JMIR Pediatr Parent 2020 (Nov 09); 3(2):e21863

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Creating a Smartphone App for Caregivers of Children With Atopic Dermatitis With Caregivers, Health Care Professionals, and Digital Health Experts: Participatory Co-Design

Xiaomeng Xu, Konstadina Griva, Mark Koh, Elaine Lum, Woan Shin Tan, Steven Thng, Josip Car

JMIR Mhealth Uhealth 2020 (Oct 29); 8(10):e16898

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Development of a Web-Based Resource for Parents of Young Children Newly Diagnosed With Autism: Participatory Research Design

Aspasia Stacey Rabba, Cheryl Dissanayake, Josephine Barbaro

JMIR Pediatr Parent 2020 (Sep 30); 3(2):e15786

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Giving Children With Osteogenesis Imperfecta a Voice: Participatory Approach for the Development of the Interactive Assessment and Communication Tool Sisom OI

Maia Siedlikowski, Frank Rauch, Argerie Tsimicalis

J Med Internet Res 2020 (Sep 22); 22(9):e17947

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Online Health Information Seeking by Parents for Their Children: Systematic Review and Agenda for Further Research

Christian Kubb, Heather M Foran

J Med Internet Res 2020 (Aug 25); 22(8):e19985

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Beneficial Features of a mHealth Asthma App for Children and Caregivers: Qualitative Study

Misa Iio, Yumiko Miyaji, Kiwako Yamamoto-Hanada, Masami Narita, Mayumi Nagata, Yukihiro Ohya

JMIR Mhealth Uhealth 2020 (Aug 24); 8(8):e18506

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Reducing Emotional Distress for Childhood Hypoglycemia in Parents (REDCHiP): Protocol for a Randomized Clinical Trial to Test a Video-Based Telehealth Intervention

Susana R Patton, Andrew McConville, Arwen M Marker, Alexandra D Monzon, Kimberly A Driscoll, Mark A Clements

JMIR Res Protoc 2020 (Aug 18); 9(8):e17877

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Adaptive Mobile Health Intervention for Adolescents with Asthma: Iterative User-Centered Development

David A Fedele, Christopher C Cushing, Natalie Koskela-Staples, Susana R Patton, Elizabeth L McQuaid, Joshua M Smyth, Sreekala Prabhakaran, Selina Gierer, Arthur M Nezu

JMIR Mhealth Uhealth 2020 (May 06); 8(5):e18400

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Testing Usability and Feasibility of a Mobile Educator Tool for Pediatric Diabetes Self-Management: Mixed Methods Pilot Study

Marisa Otis, Jack Zhu, Suleiman N Mustafa-Kutana, Angelina V Bernier, Julio Ma Shum, Arlette A Soros Dupre, Monica L Wang

JMIR Form Res 2020 (May 01); 4(5):e16262

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“Asking Too Much?”: Randomized N-of-1 Trial Exploring Patient Preferences and Measurement Reactivity to Frequent Use of Remote Multidimensional Pain Assessments in Children and Young People With Juvenile Idiopathic Arthritis

Rebecca Rachael Lee, Stephanie Shoop-Worrall, Amir Rashid, Wendy Thomson, Lis Cordingley

J Med Internet Res 2020 (Jan 30); 22(1):e14503

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