Caregiving and Parenting for Chronic Pediatric Diseases

Articles published in 2024 in this theme: 18 (scroll down to load remaining articles)

2024

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Examining the Spillover Economic Impacts of Caregiving Among Families of Children With Medical Complexity to Inform Inclusive Economic Models: Qualitative Study

Jessica Keim-Malpass, K Jane Muir, Lisa C Letzkus, Eleanore Scheer, Rupa S Valdez

J Particip Med 2024 (Dec 30); 16:e60666

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Improving Social Media-Based Support Groups for the Rare Disease Community: Interview Study With Patients and Parents of Children with Rare and Undiagnosed Diseases

Tom A Doyle, Samantha L Vershaw, Erin Conboy, Colin M E Halverson

JMIR Hum Factors 2024 (Dec 30); 11:e57833

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Factors That Affect the Quality of Life of Mothers Caring for Children With Medical Needs at Home: Cross-Sectional Questionnaire Study

Kanako Nakamura, Yuko Hamada, Ayaka Fujita, Seiichi Morokuma

Asian Pac Isl Nurs J 2024 (Dec 18); 8:e63946

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Improving Self-Efficacy, Quality of Life, and Glycemic Control in Adolescents With Type 1 Diabetes: Randomized Controlled Trial for the Evaluation of the Family-Centered Empowerment Model

Salah Alzawahreh, Candan Ozturk

JMIR Form Res 2024 (Dec 10); 8:e64463

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Development and Validation of a Prediction Model Using Sella Magnetic Resonance Imaging–Based Radiomics and Clinical Parameters for the Diagnosis of Growth Hormone Deficiency and Idiopathic Short Stature: Cross-Sectional, Multicenter Study

Kyungchul Song, Taehoon Ko, Hyun Wook Chae, Jun Suk Oh, Ho-Seong Kim, Hyun Joo Shin, Jeong-Ho Kim, Ji-Hoon Na, Chae Jung Park, Beomseok Sohn

J Med Internet Res 2024 (Nov 27); 26:e54641

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Touching Technology—Parents’ Experiences of Remote Consultations for Children With Severe Congenital Cardiac Conditions: Quasi-Experimental Cohort Study

Julie Elizabeth May McCullough, Marlene Sinclair, Jonathan Gillender, Brian McCrossan, Paul F Slater, Rosie Browne, Frank Casey

JMIR Pediatr Parent 2024 (Oct 22); 7:e54598

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Categorization of mHealth Coaching Technologies for Children or Adolescents With Type 1 Diabetes: Systematic Review

Pavel Trnka, Tahmineh Aldaghi, Jan Muzik

JMIR Pediatr Parent 2024 (Oct 10); 7:e50370

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Association of Family-Centered Care With Psychological Distress Among Caregivers of Children With Cancer at a Tertiary-Level Hospital in Ethiopia: Cross-Sectional Study

Leul Deribe, Eshetu Girma, Nataliya Lindström, Abdulkadir Gidey, Solomon Teferra, Adamu Addissie

JMIR Cancer 2024 (Oct 10); 10:e54715

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Stepped-Care Web-Based Parent Support Following Congenital Heart Disease: Protocol for a Randomized Controlled Trial

Marin Taylor, Bianca Christina Bondi, Brendan F Andrade, Stephanie H Au-Young, Vann Chau, Ashley Danguecan, Naddley Désiré, Ting Guo, Dragana Ostojic-Aitkens, Shari Wade, Steven Miller, Tricia Samantha Williams

JMIR Res Protoc 2024 (Oct 04); 13:e64216

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Effectiveness of a Mobile App (Meds@HOME) to Improve Medication Safety for Children With Medical Complexity: Protocol for a Randomized Controlled Trial

Nicole E Werner, Makenzie Morgen, Sophie Kooiman, Anna Jolliff, Gemma Warner, James Feinstein, Michelle Chui, Barbara Katz, Brittany Storhoff, Kristan Sodergren, Ryan Coller

JMIR Res Protoc 2024 (Sep 09); 13:e60621

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Toward Personalized Care and Patient Empowerment and Perspectives on a Personal Health Record in Hemophilia Care: Qualitative Interview Study

Martijn R Brands, Lotte Haverman, Jelmer J Muis, Mariëtte H E Driessens, Stephan Meijer, Felix J M van der Meer, Marianne de Jong, Johanna G van der Bom, Marjon H Cnossen, Karin Fijnvandraat, Samantha C Gouw

JMIR Hum Factors 2024 (Sep 03); 11:e48359

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Telebehavioral Health for Caregivers of Children With Behavioral Health Needs to Address Caregiver Strain: Cohort Study

Theoren Loo, Myra Altman, David Grodberg, Jennifer La Guardia, Dena Bravata

JMIR Pediatr Parent 2024 (Aug 26); 7:e59475

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Leveraging Feedback From Families of Children With Autism to Create Digital Support for Service Navigation: Descriptive Study

Meghan Burke, Chak Li, Waifong Catherine Cheung, Adriana Kaori Terol, Amanda Johnston, Stephen M Schueller

JMIR Form Res 2024 (Aug 14); 8:e56043

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Technologies for Supporting Individuals and Caregivers Living With Fetal Alcohol Spectrum Disorder: Scoping Review

Joanna Ting Wai Chu, Holly Wilson, Cynthia Zhiyin Cai, Jessica C McCormack, David Newcombe, Chris Bullen

JMIR Ment Health 2024 (Jul 11); 11:e51074

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Telepractice Parent Training of Enhanced Milieu Teaching With Phonological Emphasis (EMT+PE) For Persian-Speaking Toddlers With Nonsyndromic Cleft Palate: Protocol for a Randomized Controlled Trial

Neda Tahmasebi, Talieh Zarifian, Atieh Ashtari, Akbar Biglarian

JMIR Res Protoc 2024 (Apr 19); 13:e54426

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Moderating Effect of Depression on Glycemic Control in an eHealth Intervention Among Black Youth With Type 1 Diabetes: Findings From a Multicenter Randomized Controlled Trial

Deborah Ellis, April Idalski Carcone, Thomas Templin, Meredyth Evans, Jill Weissberg-Benchell, Colleen Buggs-Saxton, Claudia Boucher-Berry, Jennifer L Miller, Tina Drossos, M Bassem Dekelbab

JMIR Diabetes 2024 (Apr 09); 9:e55165

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The Impact of Parental Electronic Health Literacy on Disease Management and Outcomes in Pediatric Type 1 Diabetes Mellitus: Cross-Sectional Clinical Study

Áron Hölgyesi, Andrea Luczay, Péter Tóth-Heyn, Eszter Muzslay, Eszter Világos, Attila J Szabó, Petra Baji, Levente Kovács, László Gulácsi, Zsombor Zrubka, Márta Péntek

JMIR Pediatr Parent 2024 (Mar 20); 7:e54807

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Parent Perceptions of Telemedicine for Acute Pediatric Respiratory Tract Infections: Sequential Mixed Methods Study

Sarah K Burns, Tamar Krishnamurti, Tran T Doan, Janel Hanmer, Alejandro Hoberman, Jeremy M Kahn, Kelsey Schweiberger, Kristin N Ray

JMIR Pediatr Parent 2024 (Jan 16); 7:e49170

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