Caregiving and Parenting for Chronic Pediatric Diseases

Articles published in 2022 in this theme: 12 (scroll down to load remaining articles)

2022

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The Socioeconomic Indicators Linked to Parent Health-Related Technology Use: Cross-sectional Survey

Madison P McCall, Megan T Hineline, Margaret T Anton, April Highlander, Deborah J Jones

J Med Internet Res 2022 (Nov 30); 24(11):e37455

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Positive Psychology Themes in Interviews of Children With Atopic Dermatitis: Qualitative Study

Terry M Lou, Kenneth L Zhang, Noël C Slesinger, Michelle Taddeo, Eloisa Serrano, Wendy Smith Begolka, Korey Capozza, Amy S Paller, James W Griffith, Anna B Fishbein

JMIR Pediatr Parent 2022 (Sep 14); 5(3):e38725

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Effectiveness of Interventions to Promote Physical, Psychological, and Socioeconomic Well-being Outcomes of Parents of Children With Neurodevelopmental Disabilities: Protocol for a Systematic Review

Monika Novak-Pavlic, Peter Rosenbaum, Luciana Gazzi Macedo, Briano Di Rezze, Joshua Yong, Atefeh Noori, Debra Hughes

JMIR Res Protoc 2022 (Jul 28); 11(7):e38686

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Co-designing Improved Communication of Newborn Bloodspot Screening Results to Parents: Mixed Methods Study

Jane Chudleigh, Lynette Shakespeare, Pru Holder, Holly Chinnery, Gemma Hack, Tanya Gill, Rachel Gould, Kevin W Southern, Ellinor K Olander, Stephen Morris, James R Bonham, Alan Simpson, Louise Moody

J Particip Med 2022 (Jul 27); 14(1):e33485

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Emotional and Physical Health Impact in Children and Adolescents and Their Caregivers Using Open-source Automated Insulin Delivery: Qualitative Analysis of Lived Experiences

Katarina Braune, Niklas Krug, Christine Knoll, Hanne Ballhausen, Axel Thieffry, Yanbing Chen, Shane O'Donnell, Klemens Raile, Bryan Cleal

J Med Internet Res 2022 (Jul 14); 24(7):e37120

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Improving Clinical and Family Communication for Adult Child Caregivers of a Parent With a Blood Cancer: Single-Arm Pre-Post Pilot Intervention

Carma L Bylund, Easton N Wollney, Gemme Campbell-Salome, Allison J Applebaum, Samantha R Paige, Kennan DeGruccio, Elisa Weiss, Maria Sae-Hau, Jason Arnold, Domenic Durante, Tithi B Amin, Chelsea N Hampton, Carla L Fisher

JMIR Cancer 2022 (Jul 05); 8(3):e38722

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Co-creation of a Serious Game About Radiotherapy: Participatory Action Research Study With Children Treated for Cancer

Catarina Cederved, Jon Back, Charlotte Ångström-Brännström, Gustaf Ljungman, Gunn Engvall

JMIR Hum Factors 2022 (May 31); 9(2):e34476

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The Effects of a Web-Based Tool for Parents of Children With Juvenile Idiopathic Arthritis: Randomized Controlled Trial

Kathleen Mulligan, Shashivadan P Hirani, Sally Harris, Jo Taylor, Lucy R Wedderburn, Stanton Newman, WebParC Investigator group

J Med Internet Res 2022 (May 12); 24(5):e29787

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Multimedia Knowledge Translation Tools for Parents About Childhood Heart Failure: Environmental Scan

Chentel Cunningham, Hyelin Sung, James Benoit, Jennifer Conway, Shannon D Scott

JMIR Pediatr Parent 2022 (Mar 21); 5(1):e34166

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Refinement of a Parent–Child Shared Asthma Management Mobile Health App: Human-Centered Design Study

Jennifer Sonney, Emily E Cho, Qiming Zheng, Julie A Kientz

JMIR Pediatr Parent 2022 (Feb 17); 5(1):e34117

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Decision-making for Parents of Children With Medical Complexities: Activity Theory Analysis

Francine Buchanan, Claudia Lai, Eyal Cohen, Golda Milo-Manson, Aviv Shachak

J Particip Med 2022 (Jan 17); 14(1):e31699

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An mHealth App-Based Self-management Intervention for Family Members of Pediatric Transplant Recipients (myFAMI): Framework Design and Development Study

Riddhiman Adib, Dipranjan Das, Sheikh Iqbal Ahamed, Stacee Marie Lerret

JMIR Nursing 2022 (Jan 04); 5(1):e32785

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