@Article{info:doi/10.2196/64618,
author="Allemang, Brooke
and Miatello, Ashleigh
and Browne, Mira
and Barwick, Melanie
and Maini, Pranshu
and Eszczuk, Joshua
and Pandit, Chetan
and Sadhra, Tandeep
and Forhan, Laura
and Bollegala, Natasha
and Fu, Nancy
and Lee, Kate
and Dekker, Emily
and Nistor, Irina
and Ahola Kohut, Sara
and Keefer, Laurie
and Griffiths, Anne Marie
and Walters, Thomas D
and Micsinszki, Samantha
and Mack, David R
and Lawrence, Sally
and Kroeker, Karen I
and de Guzman, Jacqueline
and Tausif, Aalia
and Tersigni, Claudia
and Anthony, Samantha J
and Benchimol, Eric I",
title="Perspectives of Adolescents and Young Adults With Inflammatory Bowel Disease on a Biopsychosocial Transition Intervention: Qualitative Interview Study",
journal="JMIR Pediatr Parent",
year="2025",
month="Apr",
day="2",
volume="8",
pages="e64618",
keywords="gastroenterology; inflammatory bowel disease; biopsychosocial; patient-oriented research; transition to adult care; qualitative methods; young adults; qualitative; adolescents; patient perspectives; Crohn's disease",
abstract="Background: The transition from pediatric to adult health care marks a complex and pivotal process for adolescents and young adults with inflammatory bowel disease (IBD). This group requires support regarding disease self-management, skill development, and system navigation in preparation for transition. Evidence-based interventions are needed to promote optimal health and psychosocial outcomes for adolescents and young adults with IBD during this period. Objective: A qualitative study embedded within a randomized controlled trial was conducted to evaluate the perceived impact of a biopsychosocial transition intervention on the transition experiences of adolescents and young adults, their views on the intervention, and recommendations for future care. Methods: This patient-oriented research study used a qualitative descriptive design. Virtual semistructured interviews were held with 21 adolescents and young adults with IBD (16‐18 y) enrolled in the randomized controlled trial (intervention arm n=11 and control arm n=10). Interviews were audio-recorded, transcribed, and analyzed using an inductive approach to reflexive thematic analysis. Five members of a Youth Advisory Panel with lived experience of IBD collaborated throughout data analysis, interpretation, and the presentation of findings. Results: We constructed three themes through our analysis: (1) making meaning of transitions in care; (2) perceptions and impact of the biopsychosocial transition intervention; and (3) considerations for future transition care, including the importance of individualized support. Conclusions: Our findings illustrate the importance of relationships and the impact of a biopsychosocial intervention on adolescents' and young adults' confidence, knowledge, and self-management skills during transition. The results, which indicate the criticality of tailoring transition supports according to adolescents' and young adults' preferences and characteristics, will be used to refine the biopsychosocial intervention before it can be scaled and spread. ",
issn="2561-6722",
doi="10.2196/64618",
url="https://pediatrics.jmir.org/2025/1/e64618",
url="https://doi.org/10.2196/64618"
}