@Article{info:doi/10.2196/27542,
author="Yuwen, Weichao
and Duran, Miriana
and Tan, Minghui
and Ward, Teresa M
and Cheng, Sunny Chieh
and Ramirez, Magaly",
title="Self-Care Needs and Technology Preferences Among Parents in Marginalized Communities: Participatory Design Study",
journal="JMIR Pediatr Parent",
year="2021",
month="Jun",
day="22",
volume="4",
number="2",
pages="e27542",
keywords="asthma; caregiving; self-care; parents; qualitative research; culturally appropriate technology; minority groups; marginalization",
abstract="Background: Ten million parents provide unpaid care to children living with chronic conditions, such as asthma, and a high percentage of these parents are in marginalized communities, including racial and ethnic minority and low-income families. There is an urgent need to develop technology-enabled tailored solutions to support the self-care needs of these parents. Objective: This study aimed to use a participatory design approach to describe and compare Latino and non-Latino parents' current self-care practices, needs, and technology preferences when caring for children with asthma in marginalized communities. Methods: The participatory design approach was used to actively engage intended users in the design process and empower them to identify needs and generate design ideas to meet those needs. Results: Thirteen stakeholders participated in three design sessions. We described Latino and non-Latino parents' similarities in self-care practices and cultural-specific preferences. When coming up with ideas of technologies for self-care, non-Latino parents focused on improving caregiving stress through journaling, daily affirmations, and tracking feelings, while Latino parents focused more on relaxation and entertainment. Conclusions: Considerations need to be taken beyond language differences when developing technology-enabled interventions for diverse populations. The community partnership approach strengthened the study's inclusive design. ",
issn="2561-6722",
doi="10.2196/27542",
url="https://pediatrics.jmir.org/2021/2/e27542",
url="https://doi.org/10.2196/27542",
url="http://www.ncbi.nlm.nih.gov/pubmed/34156343"
}