%0 Journal Article
%@ 2561-6722
%I JMIR Publications
%V 4
%N 2
%P e27542
%T Self-Care Needs and Technology Preferences Among Parents in Marginalized Communities: Participatory Design Study
%A Yuwen,Weichao
%A Duran,Miriana
%A Tan,Minghui
%A Ward,Teresa M
%A Cheng,Sunny Chieh
%A Ramirez,Magaly
%+ School of Nursing & Healthcare Leadership, University of Washington Tacoma, 1900 Commerce Street, Box 358421, Tacoma, WA, 98402, United States, 1 2536924478, wyuwen@uw.edu
%K asthma
%K caregiving
%K self-care
%K parents
%K qualitative research
%K culturally appropriate technology
%K minority groups
%K marginalization
%D 2021
%7 22.6.2021
%9 Original Paper
%J JMIR Pediatr Parent
%G English
%X Background: Ten million parents provide unpaid care to children living with chronic conditions, such as asthma, and a high percentage of these parents are in marginalized communities, including racial and ethnic minority and low-income families. There is an urgent need to develop technology-enabled tailored solutions to support the self-care needs of these parents. Objective: This study aimed to use a participatory design approach to describe and compare Latino and non-Latino parents’ current self-care practices, needs, and technology preferences when caring for children with asthma in marginalized communities. Methods: The participatory design approach was used to actively engage intended users in the design process and empower them to identify needs and generate design ideas to meet those needs. Results: Thirteen stakeholders participated in three design sessions. We described Latino and non-Latino parents’ similarities in self-care practices and cultural-specific preferences. When coming up with ideas of technologies for self-care, non-Latino parents focused on improving caregiving stress through journaling, daily affirmations, and tracking feelings, while Latino parents focused more on relaxation and entertainment. Conclusions: Considerations need to be taken beyond language differences when developing technology-enabled interventions for diverse populations. The community partnership approach strengthened the study’s inclusive design. 
%M 34156343
%R 10.2196/27542
%U https://pediatrics.jmir.org/2021/2/e27542
%U https://doi.org/10.2196/27542
%U http://www.ncbi.nlm.nih.gov/pubmed/34156343