Chronic Disease Self-Management in Childhood and Adolescence

Articles published in 2023 in this theme: 25 (scroll down to load remaining articles)

2023

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Caregivers’ Perceptions, Needs, and Data Sharing Concerns in mHealth Research on Pediatric Asthma: Cross-Sectional Survey Study

Glen Meng, Maliha Jan Ali, Sze Man Tse

JMIR Pediatr Parent 2023 (Dec 19); 6:e49521

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Quality of Web-Based Sickle Cell Disease Resources for Health Care Transition: Website Content Analysis

Thomas Annesi, Caren Steinway, Toyosi Oluwole, Steffi Shilly, Dava Szalda, Regina Myers, Jack Chen, Sophia Jan

JMIR Pediatr Parent 2023 (Dec 13); 6:e48924

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Digital Technology Characteristics and Literacy Among Families With Children With Asthma: Cross-Sectional Study

Kristin Kan, Lu Morales, Avani Shah, Emily Simmons, Leonardo Barrera, Liana Massey, Greta List, Ruchi S Gupta

JMIR Pediatr Parent 2023 (Nov 29); 6:e48822

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An After-Hours Virtual Care Service for Children With Medical Complexity and New Medical Technology: Mixed Methods Feasibility Study

Katherine Babayan, Krista Keilty, Jessica Esufali, Francisco J Grajales III, Connected Care Live for Family Caregivers Advisory Group

JMIR Pediatr Parent 2023 (Nov 08); 6:e41393

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Twice-Weekly Outpatient Rehabilitation Intervention for Young Children With Spinal Muscular Atrophy Treated With Genetic-Based Therapies: Protocol for a Feasibility Study

Christina Ippolito, Lathushikka Canthiya, Amanda Floreani, Kathleen Luckhart, Andrea Hoffman, Laura McAdam

JMIR Res Protoc 2023 (Nov 02); 12:e46363

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Evaluation of Study Engagement With an mHealth Intervention (THR1VE) to Treat Diabetes Distress in Teens With Type 1 Diabetes: Randomized Clinical Trial

Lauren LeStourgeon, Erin Bergner, Karishma Datye, Randi Streisand, Sarah Jaser

JMIR Pediatr Parent 2023 (Oct 05); 6:e47089

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Web-Based Self-Compassion Training to Improve the Well-Being of Youth With Chronic Medical Conditions: Randomized Controlled Trial

Amy Louise Finlay-Jones, Asha Parkinson, Fuschia Sirois, Yael Perry, Mark Boyes, Clare S Rees

J Med Internet Res 2023 (Sep 13); 25:e44016

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A Family-Based Mental Health Navigator Intervention for Youth in the Child Welfare System: Protocol for a Randomized Controlled Trial

Marina Tolou-Shams, Megan Ramaiya, Jannet Lara Salas, Ifunanya Ezimora, Martha Shumway, Jill Duerr Berrick, Adrian Aguilera, Brian Borsari, Emily Dauria, Naomi Friedling, Crystal Holmes, Adam Grandi

JMIR Res Protoc 2023 (Sep 12); 12:e49999

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An eHealth Program for Insomnia in Children With Neurodevelopmental Disorders (Better Nights, Better Days): Protocol for an Economic Evaluation of a Randomized Controlled Trial

Xiao Yang Jia, Pantelis Andreou, Cary Brown, Evelyn Constantin, Roger Godbout, Ana Hanlon-Dearman, Osman Ipsiroglu, Graham Reid, Sarah Shea, Isabel M Smith, Jennifer D Zwicker, Shelly K Weiss, Penny Corkum

JMIR Res Protoc 2023 (Sep 12); 12:e46735

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Using IT to Improve Outcomes for Children Living With Cancer (SyMon-SAYS): Protocol for a Single-Institution Waitlist Randomized Controlled Trial

Jin-Shei Lai, Sally E Jensen, John Devin Peipert, Sandra A Mitchell, Sofia F Garcia, David Cella, Stewart Goldman, Alicia Lenzen

JMIR Res Protoc 2023 (Sep 08); 12:e50993

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Effects of a Nonwearable Digital Therapeutic Intervention on Preschoolers With Autism Spectrum Disorder in China: Open-Label Randomized Controlled Trial

Liting Chu, Li Shen, Chenhuan Ma, Jinjin Chen, Yuan Tian, Chuncao Zhang, Zilan Gong, Mengfan Li, Chengjie Wang, Lizhu Pan, Peiying Zhu, Danmai Wu, Yu Wang, Guangjun Yu

J Med Internet Res 2023 (Aug 24); 25:e45836

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Cardiovascular Risk Assessment Among Adolescents and Youths Living With HIV: Evaluation of Electronic Health Record Findings and Implications

Sitaji Gurung, Kit N Simpson, Christian Grov, H Jonathon Rendina, Terry T K Huang, Henna Budhwani, Stephen Scott Jones, Tyra Dark, Sylvie Naar

Interact J Med Res 2023 (Aug 16); 12:e41574

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Exploring Caregiver Interest in and Preferences for Interventions for Children With Risk of Asthma Exacerbation: Web-Based Survey

Gabrielle Pogge, David A Fedele, Erika A Waters, Julia Maki, Jean M Hunleth, Sreekala Prabhakaran, Deborah J Bowen, James A Shepperd

JMIR Form Res 2023 (Aug 02); 7:e46341

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Co-design of an Augmented Reality Asthma Inhaler Educational Intervention for Children: Development and Usability Study

Antonia O'Connor, Andrew Tai, Malcolm Brinn, Amy Nguyen Thuc Hien Hoang, Daniele Cataldi, Kristin Carson-Chahhoud

JMIR Pediatr Parent 2023 (Jul 25); 6:e40219

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eHealth Technologies for Monitoring Pediatric Asthma at Home: Scoping Review

Mattiènne R van der Kamp, Vera S Hengeveld, Marjolein G J Brusse-Keizer, Boony J Thio, Monique Tabak

J Med Internet Res 2023 (Jul 21); 25:e45896

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Caregivers’ Experiences With a Web- and Mobile-Based Platform for Children With Medical Complexity and the Role of a Live Platform Coach: Thematic Analysis

Ainslie Claire Shouldice, Madison Beatty, Sherri Adams, Blossom Dharmaraj, Clara Moore, Jennifer Nan Stinson, Arti Desai, Leah Bartlett, Erin Culbert, Eyal Cohen, Julia Orkin

JMIR Pediatr Parent 2023 (Jul 05); 6:e43214

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The Design, Development, and Usability Testing of an eHealth Program for Youths With Osteogenesis Imperfecta: Protocol for a 2-Phase User-Centered Mixed Methods Study

Argerie Tsimicalis, Jennifer Stinson, Kelly Thorstad, Frank Rauch, Reggie Hamdy, Khadidja Chougui, Sofia Addab, Telma Palomo, Mitchell Bernstein, Noemi Dahan-Oliel, Louis-Nicolas Veilleux, Laura Massochin Nunes Pinto, Raissa Passos dos Santos

JMIR Res Protoc 2023 (Jun 23); 12:e47524

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Comprehension by Caregivers and Adolescents of Clinical Trial Information Delivered via Multimedia Video Versus Conventional Practice: Nonrandomized Controlled Trial

Kathryn V Blake, Holly Antal, H Timothy Bunnell, Jiaxian He, Robert Henderson, Janet T Holbrook, Suzanne M McCahan, Chris Pennington, Linda Rogers, David Shade, Elizabeth A Sugar, Alexandra Taylor, Robert A Wise, Tim Wysocki

JMIR Pediatr Parent 2023 (Jun 22); 6:e44252

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Long-term Memory Testing in Children With Typical Development and Neurodevelopmental Disorders: Remote Web-based Image Task Feasibility Study

Truong An Bui, Cory Scott Rosenfelt, Kerri Hope Whitlock, Mickael Leclercq, Savannah Weber, Arnaud Droit, Sandra A Wiebe, Jacqueline Pei, Francois V Bolduc

JMIR Pediatr Parent 2023 (May 08); 6:e39720

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Acceptability and Initial Adoption of the Heart Observation App for Infants With Congenital Heart Disease: Qualitative Study

Elin Hjorth-Johansen, Elin Børøsund, Ingeborg Martinsen Østen, Henrik Holmstrøm, Anne Moen

JMIR Form Res 2023 (Apr 05); 7:e45920

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