This paper is in the following e-collection/theme issue:

Screening and Early Diagnosis in Pediatrics (21) Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (542) Electronic Health Records (966) Demographics of Users, Social & Digital Divide (679) Recruitment of Research Participants (280) Electronic/Mobile Data Capture, Internet-based Survey & Research Methodology (788)

Published on in Vol 5, No 1 (2022): Jan-Mar

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/30941, first published .
Using a Patient Portal to Increase Enrollment in a Newborn Screening Research Study: Observational Study

Using a Patient Portal to Increase Enrollment in a Newborn Screening Research Study: Observational Study

Using a Patient Portal to Increase Enrollment in a Newborn Screening Research Study: Observational Study

Authors of this article:

Lisa M Gehtland1 Author Orcid Image ;   Ryan S Paquin1 Author Orcid Image ;   Sara M Andrews1 Author Orcid Image ;   Adam M Lee2 Author Orcid Image ;   Angela Gwaltney1 Author Orcid Image ;   Martin Duparc1 Author Orcid Image ;   Emily R Pfaff2 Author Orcid Image ;   Donald B Bailey Jr1 Author Orcid Image
Article Authors Cited by (8) Tweetations (2) Metrics

Journals

  1. McInnis S, Sobolewski J, Dass M, Gehtland L, Bailey D. Using Facebook, Instagram, and Pinterest advertising campaigns to increase enrollment in newborn screening research. Frontiers in Communication 2022;7 View
  2. Nguyen O, Turner K, Lee J, Hong Y, Al‐Jumayli M, Alishahi Tabriz A. Clinical trial knowledge among U.S. adults aged 65 years and up: Findings from a 2020 national survey. Journal of the American Geriatrics Society 2023;71(6):1917 View
  3. Lee M, Chung H, Kim J. Analysis of online parenting community posts on expanded newborn screening for metabolic disorders using topic modeling: a quantitative content analysis. Korean Journal of Women Health Nursing 2023;29(1):20 View
  4. Plombon S, S. Rudin R, Sulca Flores J, Goolkasian G, Sousa J, Rodriguez J, Lipsitz S, Foer D, K. Dalal A. Assessing Equitable Recruitment in a Digital Health Trial for Asthma. Applied Clinical Informatics 2023;14(04):620 View
  5. Leviton A, Loddenkemper T. Design, implementation, and inferential issues associated with clinical trials that rely on data in electronic medical records: a narrative review. BMC Medical Research Methodology 2023;23(1) View
  6. Turchioe M, Hermann A, Benda N. Recentering responsible and explainable artificial intelligence research on patients: implications in perinatal psychiatry. Frontiers in Psychiatry 2024;14 View
  7. Therrell B, Padilla C, Borrajo G, Khneisser I, Schielen P, Knight-Madden J, Malherbe H, Kase M. Current Status of Newborn Bloodspot Screening Worldwide 2024: A Comprehensive Review of Recent Activities (2020–2023). International Journal of Neonatal Screening 2024;10(2):38 View
  8. Beaton M, Jiang X, Minto E, Lau C, Turner L, Hripcsak G, Chaudhari K, Natarajan K. Using patient portals for large-scale recruitment of individuals underrepresented in biomedical research: an evaluation of engagement patterns throughout the patient portal recruitment process at a single site within the All of Us Research Program. Journal of the American Medical Informatics Association 2024 View