Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study

Josefin Hagström   ¹ , MSc ;   Charlotte Blease   ^{1, 2} , PhD ;   Arja Harila   ³ , MD, PhD ;   Päivi Lähteenmäki   ^{4, 5} , MD, PhD ;   Isabella Scandurra   ^{6 †} , PhD ;   Maria Hägglund   ^{1, 7} , PhD

¹ Participatory eHealth and Health Data Research Group, Department of Women’s and Children’s Health, Uppsala University, Uppsala, Sweden

² Digital Psychiatry, Department of Psychiatry, Beth Israel Deaconess Medical Center, Boston, United States

³ Pediatric Oncology, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden

⁴ Department of Pediatrics and Adolescent Medicine, Turku University, Turku University Hospital, Turku, Finland

⁵ Pediatric Oncology and Pediatric Surgery, Department of Women's and Children's Health, Karolinska Institute, Stockholm, Sweden

⁶ Informatics, School of Business, Örebro University, Örebro, Sweden

⁷ MedTech Science & Innovation Centre, Uppsala University Hospital, Uppsala, Sweden

†deceased