Caregiving and Parenting for Chronic Pediatric Diseases

Perspectives of Adolescents and Young Adults With Inflammatory Bowel Disease on a Biopsychosocial Transition Intervention: Qualitative Interview Study

Brooke Allemang, Ashleigh Miatello, Mira Browne, Melanie Barwick, Pranshu Maini, Joshua Eszczuk, Chetan Pandit, Tandeep Sadhra, Laura Forhan, Natasha Bollegala, Nancy Fu, Kate Lee, Emily Dekker, Irina Nistor, Sara Ahola Kohut, Laurie Keefer, Anne Marie Griffiths, Thomas D Walters, Samantha Micsinszki, David R Mack, Sally Lawrence, Karen I Kroeker, Jacqueline de Guzman, Aalia Tausif, Claudia Tersigni, Samantha J Anthony, Eric I Benchimol

JMIR Pediatr Parent 2025 (Apr 02); 8:e64618

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Exploring Stress and Stress-Reduction With Caregivers and Clinicians in the Neonatal Intensive Care Unit to Inform Intervention Development: Qualitative Interview Study

Kristin Harrison Ginsberg, Jane Alsweiler, Jenny Rogers, Phoebe Ross, Anna Serlachius

JMIR Pediatr Parent 2025 (Apr 02); 8:e66401

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Development of a Clinical Decision Support Tool to Implement Asthma Management Guidelines in Pediatric Primary Care: Qualitative Study

David A Fedele, Jessica M Ray, Jaya L Mallela, Jiang Bian, Aokun Chen, Xiao Qin, Ramzi G Salloum, Maria Kelly, Matthew J Gurka, Jessica Hollenbach

JMIR Form Res 2025 (Mar 18); 9:e65794

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Development of an Online Scenario-Based Tool to Enable Research Participation and Public Engagement in Cystic Fibrosis Newborn Screening: Mixed Methods Study

Louise Moody, Samantha Clarke, Matt Compton, Rachael Hughson-Gill, Felicity Boardman, Corinna Clark, Pru Holder, James R Bonham, Jane Chudleigh

J Particip Med 2025 (Mar 06); 17:e59686

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Community Caregivers’ Perspectives on Health IT Use for Children With Medical Complexity: Qualitative Interview Study

Farah Elkourdi, Onur Asan

JMIR Pediatr Parent 2025 (Feb 10); 8:e67289

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Digital Health Program to Support Family Caregivers of Children Undergoing Growth Hormone Therapy: Qualitative Feasibility Study

Alba Jiménez-Díaz, Maitena Pierantonelli, Patricia Morte Coscolín, Amaia Salinas-Uhalte, Silvia Quer-Palomas, Octavio Rivera-Romero, Rocío Herrero, Luis Fernández-Luque, Rosa Baños, Ricardo C Berrios, Antonio de Arriba

JMIR Pediatr Parent 2025 (Feb 05); 8:e55023

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Parental Experiences of Administering Pediatric Tuina for Sleep and Appetite in Early School-Aged Children With Attention-Deficit/Hyperactivity Disorder: Qualitative Study in Hong Kong

Shu-Cheng Chen, Kwai-Ching Lo, Han Li, Pong-Ming Wong, Lok-Yi Pang, Jing Qin, Wing-Fai Yeung

JMIR Pediatr Parent 2025 (Jan 30); 8:e65471

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Families’ Experiences With Family-Focused Web-Based Interventions for Improving Health: Qualitative Systematic Literature Review

Diana Zhu, Aimee L Dordevic, Zoe E Davidson, Simone Gibson

J Med Internet Res 2025 (Jan 30); 27:e58774

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Engagement With an Internet-Administered, Guided, Low-Intensity Cognitive Behavioral Therapy Intervention for Parents of Children Treated for Cancer: Analysis of Log-Data From the ENGAGE Feasibility Trial

Christina Reuther, Louise von Essen, Mudassir Imran Mustafa, Markus Saarijärvi, Joanne Woodford

JMIR Form Res 2025 (Jan 28); 9:e67171

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Developing Assessments for Key Stakeholders in Pediatric Congenital Heart Disease: Qualitative Pilot Study to Inform Designing of a Medical Education Toy

Neda Barbazi, Ji Youn Shin, Gurumurthy Hiremath, Carlye Anne Lauff

JMIR Form Res 2025 (Jan 27); 9:e63818

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Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study

Josefin Hagström, Charlotte Blease, Arja Harila, Päivi Lähteenmäki, Isabella Scandurra, Maria Hägglund

JMIR Pediatr Parent 2025 (Jan 27); 8:e63270

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Children’s and Their Parents’ Experiences With Home-Based Guided Hypnotherapy: Qualitative Study

Ilse N Ganzevoort, Adriëlla L van der Veen, Manna A Alma, Marjolein Y Berger, Gea A Holtman

JMIR Pediatr Parent 2025 (Jan 27); 8:e58301

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Using Community Engagement to Create a Telecoaching Intervention to Improve Self-Management in Adolescents and Young Adults With Cystic Fibrosis: Qualitative Study

Christina L Duncan, Emily F Muther, Jennifer J Lindwall, Kristine Durkin, Elizabeth Ruvalcaba, Eliza Williamson, Corrine Ahrabi-Nejad, Evelyn Bord, Angela Green, Megan L Harrison, Deepika Polineni

J Particip Med 2025 (Jan 20); 17:e49941

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Transformative Gamified Binocular Therapy for Unilateral Amblyopia in Young Children: Pilot Prospective Efficacy and Safety Study

Wenqing Zhu, Shuneng Gu, Jian Li, Jin Lin, Chanling Hu, Rui Liu

JMIR Serious Games 2025 (Jan 16); 13:e63384

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Examining the Spillover Economic Impacts of Caregiving Among Families of Children With Medical Complexity to Inform Inclusive Economic Models: Qualitative Study

Jessica Keim-Malpass, K Jane Muir, Lisa C Letzkus, Eleanore Scheer, Rupa S Valdez

J Particip Med 2024 (Dec 30); 16:e60666

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Improving Social Media-Based Support Groups for the Rare Disease Community: Interview Study With Patients and Parents of Children with Rare and Undiagnosed Diseases

Tom A Doyle, Samantha L Vershaw, Erin Conboy, Colin M E Halverson

JMIR Hum Factors 2024 (Dec 30); 11:e57833

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Factors That Affect the Quality of Life of Mothers Caring for Children With Medical Needs at Home: Cross-Sectional Questionnaire Study

Kanako Nakamura, Yuko Hamada, Ayaka Fujita, Seiichi Morokuma

Asian Pac Isl Nurs J 2024 (Dec 18); 8:e63946

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Improving Self-Efficacy, Quality of Life, and Glycemic Control in Adolescents With Type 1 Diabetes: Randomized Controlled Trial for the Evaluation of the Family-Centered Empowerment Model

Salah Alzawahreh, Candan Ozturk

JMIR Form Res 2024 (Dec 10); 8:e64463

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Development and Validation of a Prediction Model Using Sella Magnetic Resonance Imaging–Based Radiomics and Clinical Parameters for the Diagnosis of Growth Hormone Deficiency and Idiopathic Short Stature: Cross-Sectional, Multicenter Study

Kyungchul Song, Taehoon Ko, Hyun Wook Chae, Jun Suk Oh, Ho-Seong Kim, Hyun Joo Shin, Jeong-Ho Kim, Ji-Hoon Na, Chae Jung Park, Beomseok Sohn

J Med Internet Res 2024 (Nov 27); 26:e54641

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Touching Technology—Parents’ Experiences of Remote Consultations for Children With Severe Congenital Cardiac Conditions: Quasi-Experimental Cohort Study

Julie Elizabeth May McCullough, Marlene Sinclair, Jonathan Gillender, Brian McCrossan, Paul F Slater, Rosie Browne, Frank Casey

JMIR Pediatr Parent 2024 (Oct 22); 7:e54598

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