Caregiving and Parenting for Chronic Pediatric Diseases

Effectiveness of a Mobile App (Meds@HOME) to Improve Medication Safety for Children With Medical Complexity: Protocol for a Randomized Controlled Trial

Nicole E Werner, Makenzie Morgen, Sophie Kooiman, Anna Jolliff, Gemma Warner, James Feinstein, Michelle Chui, Barbara Katz, Brittany Storhoff, Kristan Sodergren, Ryan Coller

JMIR Res Protoc 2024 (Sep 09); 13:e60621

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Toward Personalized Care and Patient Empowerment and Perspectives on a Personal Health Record in Hemophilia Care: Qualitative Interview Study

Martijn R Brands, Lotte Haverman, Jelmer J Muis, Mariëtte H E Driessens, Stephan Meijer, Felix J M van der Meer, Marianne de Jong, Johanna G van der Bom, Marjon H Cnossen, Karin Fijnvandraat, Samantha C Gouw

JMIR Hum Factors 2024 (Sep 03); 11:e48359

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Telebehavioral Health for Caregivers of Children With Behavioral Health Needs to Address Caregiver Strain: Cohort Study

Theoren Loo, Myra Altman, David Grodberg, Jennifer La Guardia, Dena Bravata

JMIR Pediatr Parent 2024 (Aug 26); 7:e59475

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Leveraging Feedback From Families of Children With Autism to Create Digital Support for Service Navigation: Descriptive Study

Meghan Burke, Chak Li, Waifong Catherine Cheung, Adriana Kaori Terol, Amanda Johnston, Stephen M Schueller

JMIR Form Res 2024 (Aug 14); 8:e56043

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Technologies for Supporting Individuals and Caregivers Living With Fetal Alcohol Spectrum Disorder: Scoping Review

Joanna Ting Wai Chu, Holly Wilson, Cynthia Zhiyin Cai, Jessica C McCormack, David Newcombe, Chris Bullen

JMIR Ment Health 2024 (Jul 11); 11:e51074

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Telepractice Parent Training of Enhanced Milieu Teaching With Phonological Emphasis (EMT+PE) For Persian-Speaking Toddlers With Nonsyndromic Cleft Palate: Protocol for a Randomized Controlled Trial

Neda Tahmasebi, Talieh Zarifian, Atieh Ashtari, Akbar Biglarian

JMIR Res Protoc 2024 (Apr 19); 13:e54426

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Moderating Effect of Depression on Glycemic Control in an eHealth Intervention Among Black Youth With Type 1 Diabetes: Findings From a Multicenter Randomized Controlled Trial

Deborah Ellis, April Idalski Carcone, Thomas Templin, Meredyth Evans, Jill Weissberg-Benchell, Colleen Buggs-Saxton, Claudia Boucher-Berry, Jennifer L Miller, Tina Drossos, M Bassem Dekelbab

JMIR Diabetes 2024 (Apr 09); 9:e55165

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The Impact of Parental Electronic Health Literacy on Disease Management and Outcomes in Pediatric Type 1 Diabetes Mellitus: Cross-Sectional Clinical Study

Áron Hölgyesi, Andrea Luczay, Péter Tóth-Heyn, Eszter Muzslay, Eszter Világos, Attila J Szabó, Petra Baji, Levente Kovács, László Gulácsi, Zsombor Zrubka, Márta Péntek

JMIR Pediatr Parent 2024 (Mar 20); 7:e54807

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Parent Perceptions of Telemedicine for Acute Pediatric Respiratory Tract Infections: Sequential Mixed Methods Study

Sarah K Burns, Tamar Krishnamurti, Tran T Doan, Janel Hanmer, Alejandro Hoberman, Jeremy M Kahn, Kelsey Schweiberger, Kristin N Ray

JMIR Pediatr Parent 2024 (Jan 16); 7:e49170

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Caregivers’ Perceptions, Needs, and Data Sharing Concerns in mHealth Research on Pediatric Asthma: Cross-Sectional Survey Study

Glen Meng, Maliha Jan Ali, Sze Man Tse

JMIR Pediatr Parent 2023 (Dec 19); 6:e49521

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Parent Perceptions of Trainees in Pediatric Care: Cross-Sectional Study

Haley Strouf Motley, Bradley Kerr, Daniel J Sklansky, Jens Eickhoff, Megan A Moreno, Jessica C Babal

JMIR Form Res 2023 (Dec 13); 7:e46631

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Digital Technology Characteristics and Literacy Among Families With Children With Asthma: Cross-Sectional Study

Kristin Kan, Lu Morales, Avani Shah, Emily Simmons, Leonardo Barrera, Liana Massey, Greta List, Ruchi S Gupta

JMIR Pediatr Parent 2023 (Nov 29); 6:e48822

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Exploring Caregiver Interest in and Preferences for Interventions for Children With Risk of Asthma Exacerbation: Web-Based Survey

Gabrielle Pogge, David A Fedele, Erika A Waters, Julia Maki, Jean M Hunleth, Sreekala Prabhakaran, Deborah J Bowen, James A Shepperd

JMIR Form Res 2023 (Aug 02); 7:e46341

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eHealth Technologies for Monitoring Pediatric Asthma at Home: Scoping Review

Mattiènne R van der Kamp, Vera S Hengeveld, Marjolein G J Brusse-Keizer, Boony J Thio, Monique Tabak

J Med Internet Res 2023 (Jul 21); 25:e45896

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Designing a Collaborative Patient-Centered Digital Health Platform for Pediatric Diabetes Care in British Columbia: Formative Needs Assessment by Caregivers of Children and Youths Living With Type 1 Diabetes and Health Care Providers

Fatema S Abdulhussein, Susan Pinkney, Matthias Görges, Tibor van Rooij, Shazhan Amed

JMIR Pediatr Parent 2023 (Jul 13); 6:e46432

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Remote Patient Monitoring and Teleconsultation to Improve Health Outcomes and Reduce Health Care Utilization of Pediatric Asthma (ALPACA Study): Protocol for a Randomized Controlled Effectiveness Trial

Mattienne van der Kamp, Vera Hengeveld, Nico Willard, Boony Thio, Pascal de Graaf, Inge Geven, Monique Tabak

JMIR Res Protoc 2023 (Jul 03); 12:e45585

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The Electronic Surviving Cancer Competently Intervention Program—a Psychosocial Digital Health Intervention for English- and Spanish-Speaking Parents of Children With Cancer: Protocol for Randomized Controlled Trial

Kimberly S Canter, Lee Ritterband, David R Freyer, Martha A Askins, Laura Bava, Caitlyn Loucas, Kamyar Arasteh, Wen You, Anne E Kazak

JMIR Res Protoc 2023 (Jun 02); 12:e46339

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Acceptability and Initial Adoption of the Heart Observation App for Infants With Congenital Heart Disease: Qualitative Study

Elin Hjorth-Johansen, Elin Børøsund, Ingeborg Martinsen Østen, Henrik Holmstrøm, Anne Moen

JMIR Form Res 2023 (Apr 05); 7:e45920

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Parent Experiences of Child Loss and End-of-Life Care in a Pediatric Intensive Care Unit: Protocol for a Qualitative Study

Sara Alcón Nájera, Maria Teresa González-Gil

JMIR Res Protoc 2023 (Mar 22); 12:e43756

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Physiological and Psychological Effects of Parent-Delivered Traditional Thai Massage in Children With Autism: Protocol for a Randomized Controlled Trial

Hui Ruan, Wichai Eungpinichpong, Hua Wu, Chanada Aonsri

JMIR Res Protoc 2023 (Feb 08); 12:e41839

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