Caregiving and Parenting for Chronic Pediatric Diseases

Effectiveness of Interventions to Promote Physical, Psychological, and Socioeconomic Well-being Outcomes of Parents of Children With Neurodevelopmental Disabilities: Protocol for a Systematic Review

Monika Novak-Pavlic, Peter Rosenbaum, Luciana Gazzi Macedo, Briano Di Rezze, Joshua Yong, Atefeh Noori, Debra Hughes

JMIR Res Protoc 2022 (Jul 28); 11(7):e38686

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Emotional and Physical Health Impact in Children and Adolescents and Their Caregivers Using Open-source Automated Insulin Delivery: Qualitative Analysis of Lived Experiences

Katarina Braune, Niklas Krug, Christine Knoll, Hanne Ballhausen, Axel Thieffry, Yanbing Chen, Shane O'Donnell, Klemens Raile, Bryan Cleal

J Med Internet Res 2022 (Jul 14); 24(7):e37120

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Improving Clinical and Family Communication for Adult Child Caregivers of a Parent With a Blood Cancer: Single-Arm Pre-Post Pilot Intervention

Carma L Bylund, Easton N Wollney, Gemme Campbell-Salome, Allison J Applebaum, Samantha R Paige, Kennan DeGruccio, Elisa Weiss, Maria Sae-Hau, Jason Arnold, Domenic Durante, Tithi B Amin, Chelsea N Hampton, Carla L Fisher

JMIR Cancer 2022 (Jul 05); 8(3):e38722

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Co-creation of a Serious Game About Radiotherapy: Participatory Action Research Study With Children Treated for Cancer

Catarina Cederved, Jon Back, Charlotte Ångström-Brännström, Gustaf Ljungman, Gunn Engvall

JMIR Hum Factors 2022 (May 31); 9(2):e34476

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The Effects of a Web-Based Tool for Parents of Children With Juvenile Idiopathic Arthritis: Randomized Controlled Trial

Kathleen Mulligan, Shashivadan P Hirani, Sally Harris, Jo Taylor, Lucy R Wedderburn, Stanton Newman, WebParC Investigator group

J Med Internet Res 2022 (May 12); 24(5):e29787

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Multimedia Knowledge Translation Tools for Parents About Childhood Heart Failure: Environmental Scan

Chentel Cunningham, Hyelin Sung, James Benoit, Jennifer Conway, Shannon D Scott

JMIR Pediatr Parent 2022 (Mar 21); 5(1):e34166

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Refinement of a Parent–Child Shared Asthma Management Mobile Health App: Human-Centered Design Study

Jennifer Sonney, Emily E Cho, Qiming Zheng, Julie A Kientz

JMIR Pediatr Parent 2022 (Feb 17); 5(1):e34117

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Decision-making for Parents of Children With Medical Complexities: Activity Theory Analysis

Francine Buchanan, Claudia Lai, Eyal Cohen, Golda Milo-Manson, Aviv Shachak

J Particip Med 2022 (Jan 17); 14(1):e31699

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An mHealth App-Based Self-management Intervention for Family Members of Pediatric Transplant Recipients (myFAMI): Framework Design and Development Study

Riddhiman Adib, Dipranjan Das, Sheikh Iqbal Ahamed, Stacee Marie Lerret

JMIR Nursing 2022 (Jan 04); 5(1):e32785

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Digital Interventions to Improve Health Literacy Among Parents of Children Aged 0 to 12 Years With a Health Condition: Systematic Review

Evalotte Mörelius, Suzanne Robinson, Diana Arabiat, Lisa Whitehead

J Med Internet Res 2021 (Dec 22); 23(12):e31665

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Initial Feasibility of the “Families Moving Forward Connect” Mobile Health Intervention for Caregivers of Children With Fetal Alcohol Spectrum Disorders: Mixed Method Evaluation Within a Systematic User-Centered Design Approach

Christie Lynn McGee Petrenko, Carson Christine Kautz-Turnbull, Alicia Rose Roth, Jennifer Elizabeth Parr, Cristiano Tapparello, Utku Demir, Heather Carmichael Olson

JMIR Form Res 2021 (Dec 02); 5(12):e29687

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Effectiveness of a Mobile Device–Based Resilience Training Program in Reducing Depressive Symptoms and Enhancing Resilience and Quality of Life in Parents of Children With Cancer: Randomized Controlled Trial

Yuanhui Luo, Wei Xia, Ankie Tan Cheung, Laurie Long Kwan Ho, Jingping Zhang, Jianhui Xie, Pin Xiao, Ho Cheung William Li

J Med Internet Res 2021 (Nov 29); 23(11):e27639

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Internet-Administered Cognitive Behavioral Therapy for Common Mental Health Difficulties in Parents of Children Treated for Cancer: Intervention Development and Description Study

Joanne Woodford, Paul Farrand, Josefin Hagström, Li Hedenmalm, Louise von Essen

JMIR Form Res 2021 (Jul 22); 5(7):e22709

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Self-Care Needs and Technology Preferences Among Parents in Marginalized Communities: Participatory Design Study

Weichao Yuwen, Miriana Duran, Minghui Tan, Teresa M Ward, Sunny Chieh Cheng, Magaly Ramirez

JMIR Pediatr Parent 2021 (Jun 22); 4(2):e27542

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Parents' Perspectives on a Computer Game–Assisted Rehabilitation Program for Manual Dexterity in Children With Cerebral Palsy: Qualitative Analysis of Expectations, Child Engagement, and Benefits

Anuprita Kanitkar, Sanjay Tejraj Parmar, Tony J Szturm, Gayle Restall, Gina Rempel, Nariman Sepehri

JMIR Rehabil Assist Technol 2021 (May 31); 8(2):e24337

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Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial

Anna M Hood, Heather Strong, Cara Nwankwo, Yolanda Johnson, James Peugh, Constance A Mara, Lisa M Shook, William B Brinkman, Francis J Real, Melissa D Klein, Rogelle Hackworth, Sherif M Badawy, Alexis A Thompson, Jean L Raphael, Amber M Yates, Kim Smith-Whitley, Allison A King, Cecelia Calhoun, Susan E Creary, Connie M Piccone, Aimee K Hildenbrand, Steven K Reader, Lynne Neumayr, Emily R Meier, Amy E Sobota, Sohail Rana, Maria Britto, Kay L Saving, Marsha Treadwell, Charles T Quinn, Russell E Ware, Lori E Crosby

JMIR Res Protoc 2021 (May 21); 10(5):e27650

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Feasibility of a Voice-Enabled Medical Diary App (SpeakHealth) for Caregivers of Children With Special Health Care Needs and Health Care Providers: Mixed Methods Study

Emre Sezgin, Garey Noritz, Simon Lin, Yungui Huang

JMIR Form Res 2021 (May 11); 5(5):e25503

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Parent Experiences With Electronic Medication Monitoring in Pediatric Asthma Management: Qualitative Study

Kristin Kan, Sara Shaunfield, Madeleine Kanaley, Avneet Chadha, Kathy Boon, Carolyn C Foster, Luis Morales, Patricia Labellarte, Deneen Vojta, Ruchi S Gupta

JMIR Pediatr Parent 2021 (Apr 23); 4(2):e25811

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Telehealth Diabetes Prevention Intervention for the Next Generation of African American Youth: Protocol for a Pilot Trial

Abigail Gamble, Bettina M Beech, Breanna C Wade, Victor D Sutton, Crystal Lim, Shanda Sandridge, Michael A Welsch

JMIR Res Protoc 2021 (Mar 31); 10(3):e25699

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Conversational Agents as Mediating Social Actors in Chronic Disease Management Involving Health Care Professionals, Patients, and Family Members: Multisite Single-Arm Feasibility Study

Tobias Kowatsch, Theresa Schachner, Samira Harperink, Filipe Barata, Ullrich Dittler, Grace Xiao, Catherine Stanger, Florian v Wangenheim, Elgar Fleisch, Helmut Oswald, Alexander Möller

J Med Internet Res 2021 (Feb 17); 23(2):e25060

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