Published on in Vol 3, No 1 (2020): Jan-Jun

Preprints (earlier versions) of this paper are available at, first published .
Web-Based Technology to Improve Disease Knowledge Among Adolescents With Sickle Cell Disease: Pilot Study

Web-Based Technology to Improve Disease Knowledge Among Adolescents With Sickle Cell Disease: Pilot Study

Web-Based Technology to Improve Disease Knowledge Among Adolescents With Sickle Cell Disease: Pilot Study


  1. Liu D, Yamashita T, Burston B, Keene J, Meeks S. The Use of Online Health-Management Tools and Health Care Utilization Among Older Americans. The Gerontologist 2020;60(7):1224 View
  2. Phillips S, Kanter J, Mueller M, Gulledge A, Ruggiero K, Johnson M, Kelechi T. Feasibility of an mHealth self-management intervention for children and adolescents with sickle cell disease and their families. Translational Behavioral Medicine 2021;11(3):724 View
  3. Viola A, Porter J, Shipman J, Brooks E, Valrie C. A scoping review of transition interventions for young adults with sickle cell disease. Pediatric Blood & Cancer 2021;68(9) View
  4. Rea K, Cushman G, Santee T, Mee L. Biopsychosocial factors related to transition among adolescents and young adults with sickle cell disease: A systematic review. Critical Reviews in Oncology/Hematology 2021;167:103498 View
  5. Lalloo C, Nishat F, Zempsky W, Bakshi N, Badawy S, Ko Y, Dampier C, Stinson J, Palermo T. Characterizing User Engagement With a Digital Intervention for Pain Self-management Among Youth With Sickle Cell Disease and Their Caregivers: Subanalysis of a Randomized Controlled Trial. Journal of Medical Internet Research 2022;24(8):e40096 View
  6. Poku B, Atkin K, Kirk S. Self‐management interventions for children and young people with sickle cell disease: A systematic review. Health Expectations 2023;26(2):579 View
  7. Calhoun C, Luo L, Baumann A, Bauer A, Shen E, McKay V, Hooley C, James A, King A. Transition for Adolescents and Young Adults With Sickle Cell Disease in a US Midwest Urban Center: A Multilevel Perspective on Barriers, Facilitators, and Future Directions. Journal of Pediatric Hematology/Oncology 2022;44(5):e872 View
  8. Hampl S, Hassink S, Skinner A, Armstrong S, Barlow S, Bolling C, Avila Edwards K, Eneli I, Hamre R, Joseph M, Lunsford D, Mendonca E, Michalsky M, Mirza N, Ochoa E, Sharifi M, Staiano A, Weedn A, Flinn S, Lindros J, Okechukwu K. Clinical Practice Guideline for the Evaluation and Treatment of Children and Adolescents With Obesity. Pediatrics 2023;151(2) View
  9. Sterlin A, de Montalembert M, Taylor M, Mensah S, Vandaele M, Lanzeray A, Poiraud L, Allali S. Impact of COVID-19 pandemic on access to online therapeutic education programs for children with sickle cell disease. Journal of Pediatric Nursing 2022;66:179 View
  10. Zanchetta M, Sarpong A, Osei-Boateng J, Nazzal A, Teixeira M, Lainé A, Rémy-Thélusma M. Genetic literacy and experiential knowledge on sickle cell disease among Canadian- and foreign-born male and female Anglophone and Francophone youth in Canada. International Journal of Adolescent Medicine and Health 2023;35(6):443 View
  11. Aurora T, Cole A, Rai P, Lavoie P, McIvor C, Klesges L, Kang G, Liyanage J, Brandt H, Hankins J. Multicomponent Strategy Improves Human Papillomavirus Vaccination Rates Among Adolescents with Sickle Cell Disease. The Journal of Pediatrics 2024;265:113791 View

Books/Policy Documents

  1. Porter J, Valrie C, Viola A, Shipman J. Sleep Medicine. View