This paper is in the following e-collection/theme issue:

Chronic Disease Self-Management in Childhood and Adolescence (139)

Published on in Vol 1, No 2 (2018): Jul-Dec

Exploring the Needs of Adolescents With Sickle Cell Disease to Inform a Digital Self-Management and Transitional Care Program: Qualitative Study

Exploring the Needs of Adolescents With Sickle Cell Disease to Inform a Digital Self-Management and Transitional Care Program: Qualitative Study

Exploring the Needs of Adolescents With Sickle Cell Disease to Inform a Digital Self-Management and Transitional Care Program: Qualitative Study

Authors of this article:

Yalinie Kulandaivelu1, 2 Author Orcid Image ;   Chitra Lalloo1, 2 Author Orcid Image ;   Richard Ward3 Author Orcid Image ;   William T Zempsky4 Author Orcid Image ;   Melanie Kirby-Allen5 Author Orcid Image ;   Vicky R Breakey6, 7 Author Orcid Image ;   Isaac Odame5, 8 Author Orcid Image ;   Fiona Campbell9, 10 Author Orcid Image ;   Khush Amaria11 Author Orcid Image ;   Ewurabena A Simpson12, 13 Author Orcid Image ;   Cynthia Nguyen1 Author Orcid Image ;   Tessy George1 Author Orcid Image ;   Jennifer N Stinson1 Author Orcid Image
Article Authors Cited by (21) Tweetations (2) Metrics

Journals

  1. Issom D, Henriksen A, Woldaregay A, Rochat J, Lovis C, Hartvigsen G. Factors Influencing Motivation and Engagement in Mobile Health Among Patients With Sickle Cell Disease in Low-Prevalence, High-Income Countries: Qualitative Exploration of Patient Requirements. JMIR Human Factors 2020;7(1):e14599 View
  2. Hasan M, Aziz M, Zarif M, Hasan M, Hashem M, Guha S, Love R, Ahamed S. Noninvasive Hemoglobin Level Prediction in a Mobile Phone Environment: State of the Art Review and Recommendations. JMIR mHealth and uHealth 2021;9(4):e16806 View
  3. Shaygan M, Jaberi A. The effect of a smartphone-based pain management application on pain intensity and quality of life in adolescents with chronic pain. Scientific Reports 2021;11(1) View
  4. Viola A, Porter J, Shipman J, Brooks E, Valrie C. A scoping review of transition interventions for young adults with sickle cell disease. Pediatric Blood & Cancer 2021;68(9) View
  5. Rea K, Cushman G, Santee T, Mee L. Biopsychosocial factors related to transition among adolescents and young adults with sickle cell disease: A systematic review. Critical Reviews in Oncology/Hematology 2021;167:103498 View
  6. Hoegy D, Guilloux R, Bleyzac N, Gauthier-Vasserot A, Cannas G, Bertrand Y, Dussart C, Janoly-Dumenil A. Pediatric-Adult Care Transition: Perceptions of Adolescent and Young Adult Patients with Sickle Cell Disease and Their Healthcare Providers. Patient Preference and Adherence 2022;Volume 16:2727 View
  7. Shaygan M, Jaberi A. The experience of chronic pain among adolescents: suffering and attempt to overcome pain?. BMC Pediatrics 2022;22(1) View
  8. Lalloo C, Nishat F, Zempsky W, Bakshi N, Badawy S, Ko Y, Dampier C, Stinson J, Palermo T. Characterizing User Engagement With a Digital Intervention for Pain Self-management Among Youth With Sickle Cell Disease and Their Caregivers: Subanalysis of a Randomized Controlled Trial. Journal of Medical Internet Research 2022;24(8):e40096 View
  9. Wickersham K, Dawson R, Becker K, Everhart K, Miles H, Schultz B, Tucker C, Wright P, Jenerette C. Experiences of African Americans Living With Sickle Cell Disease. Journal of Transcultural Nursing 2022;33(3):334 View
  10. Dhinagaran D, Sathish T, Kowatsch T, Griva K, Best J, Tudor Car L. Public Perceptions of Diabetes, Healthy Living, and Conversational Agents in Singapore: Needs Assessment. JMIR Formative Research 2021;5(11):e30435 View
  11. LeBeau K, Collins S, Zori G, Walker D, Marchi E, Pomeranz J, Hart M. Evaluating a novel hospital-based online health community to address palliative and psychosocial care factors for chronically ill adolescent and young adult patients. Palliative and Supportive Care 2024;22(3):432 View
  12. France E, Uny I, Turley R, Thomson K, Noyes J, Jordan A, Forbat L, Caes L, Silveira Bianchim M. A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments. Cochrane Database of Systematic Reviews 2023;2023(10) View
  13. Buono F, Larkin K, Pham Q, De Sousa D, Zempsky W, Lalloo C, Stinson J. Maintaining Engagement in Adults with Neurofibromatosis Type 1 to Use the iCanCope Mobile Application (iCanCope-NF). Cancers 2023;15(12):3213 View
  14. Obeagu E, Obeagu G. Management of diabetes mellitus patients with sickle cell anemia: Challenges and therapeutic approaches. Medicine 2024;103(17):e37941 View
  15. Silveira Bianchim M, Caes L, Forbat L, Jordan A, Noyes J, Thomson K, Turley R, Uny I, France E. Understanding how children and young people with chronic non-cancer pain and their families experience living with pain, pain management and services: a meta-ethnography. Health and Social Care Delivery Research 2024:1 View
  16. Prince B, Garee A, Holly A, Gift T, Ramsey A. Transitions of Care in Patients With Inborn Errors of Immunity. The Journal of Allergy and Clinical Immunology: In Practice 2024;12(10):2687 View
  17. Steinway C, Shilly S, Belton T, Smith-Whitley K, Jan S, Schwartz L, Crosby L. Development of the iManage SCD mobile health application for transition. Health Care Transitions 2024;2:100074 View

Books/Policy Documents

  1. Kulandaivelu Y, Kohut S. Peer Support in Medicine. View
  2. McGillion M, LeFort S, Webber K, Stinson J, Lalloo C. Clinical Pain Management. View
  3. Issom D. Sickle Cell Disease. View