Published on in Vol 1, No 2 (2018): Jul-Dec

Exploring the Needs of Adolescents With Sickle Cell Disease to Inform a Digital Self-Management and Transitional Care Program: Qualitative Study

Exploring the Needs of Adolescents With Sickle Cell Disease to Inform a Digital Self-Management and Transitional Care Program: Qualitative Study

Exploring the Needs of Adolescents With Sickle Cell Disease to Inform a Digital Self-Management and Transitional Care Program: Qualitative Study

Yalinie Kulandaivelu   1, 2 , BSc (Hons) ;   Chitra Lalloo   1, 2 , PhD ;   Richard Ward   3 , MSc, MRCP, FRCPath ;   William T Zempsky   4 , MD, MPH ;   Melanie Kirby-Allen   5 , MD ;   Vicky R Breakey   6, 7 , MD, MEd, FRCPC ;   Isaac Odame   5, 8 , MBChB, MRCP(UK), FRCPath, FRCPCH, FRCPC ;   Fiona Campbell   9, 10 , BSc, MD, FRCA(UK) ;   Khush Amaria   11 , PhD, CPsych ;   Ewurabena A Simpson   12, 13 , MDCM, MPH, FRCPC ;   Cynthia Nguyen   2 , BSc (Hons), CCRP, MPH ;   Tessy George   2 , BSc (Hons), BScN ;   Jennifer N Stinson   2 , RN-EC, PhD, CPNP, FAAN

1 Institute of Health Policy, Management & Evaluation, University of Toronto, Toronto, ON, Canada

2 Department of Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, ON, Canada

3 Division of Haematology, University Health Network, Toronto, ON, Canada

4 Division of Pain and Palliative Medicine, Connecticut Children's Medical Center, University of Connecticut School of Medicine, Hartford, CT, United States

5 Departments of Haematology/Oncology, The Hospital for Sick Children, Toronto, ON, Canada

6 Department of Pediatrics, McMaster University, Hamilton, ON, Canada

7 Department of Pediatrics, McMaster Children's Hospital, Hamilton, ON, Canada

8 Department of Paediatrics, University of Toronto, Toronto, ON, Canada

9 Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada

10 Department of Anesthesia, Faculty of Medicine, University of Toronto, Toronto, ON, Canada

11 Department of Psychology, The Hospital for Sick Children, Toronto, ON, Canada

12 Faculty of Medicine, University of Ottawa, Ottawa, ON, Canada

13 Division of Hematology/Oncology, Children's Hospital of Eastern Ontario, Ottawa, ON, Canada

Corresponding Author: