Exploring the Needs of Adolescents With Sickle Cell Disease to Inform a Digital Self-Management and Transitional Care Program: Qualitative Study

Yalinie Kulandaivelu   ^{1, 2} , BSc (Hons) ;   Chitra Lalloo   ^{1, 2} , PhD ;   Richard Ward   ³ , MSc, MRCP, FRCPath ;   William T Zempsky   ⁴ , MD, MPH ;   Melanie Kirby-Allen   ⁵ , MD ;   Vicky R Breakey   ^{6, 7} , MD, MEd, FRCPC ;   Isaac Odame   ^{5, 8} , MBChB, MRCP(UK), FRCPath, FRCPCH, FRCPC ;   Fiona Campbell   ^{9, 10} , BSc, MD, FRCA(UK) ;   Khush Amaria   ¹¹ , PhD, CPsych ;   Ewurabena A Simpson   ^{12, 13} , MDCM, MPH, FRCPC ;   Cynthia Nguyen   ¹ , BSc (Hons), CCRP, MPH ;   Tessy George   ¹ , BSc (Hons), BScN ;   Jennifer N Stinson   ¹ , RN-EC, PhD, CPNP, FAAN

¹ Department of Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, ON, Canada

² Institute of Health Policy, Management & Evaluation, University of Toronto, Toronto, ON, Canada

³ Division of Haematology, University Health Network, Toronto, ON, Canada

⁴ Division of Pain and Palliative Medicine, Connecticut Children's Medical Center, University of Connecticut School of Medicine, Hartford, CT, United States

⁵ Departments of Haematology/Oncology, The Hospital for Sick Children, Toronto, ON, Canada

⁶ Department of Pediatrics, McMaster Children's Hospital, Hamilton, ON, Canada

⁷ Department of Pediatrics, McMaster University, Hamilton, ON, Canada

⁸ Department of Paediatrics, University of Toronto, Toronto, ON, Canada

⁹ Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, Toronto, ON, Canada

¹⁰ Department of Anesthesia, Faculty of Medicine, University of Toronto, Toronto, ON, Canada

¹¹ Department of Psychology, The Hospital for Sick Children, Toronto, ON, Canada

¹² Division of Hematology/Oncology, Children's Hospital of Eastern Ontario, Ottawa, ON, Canada

¹³ Faculty of Medicine, University of Ottawa, Ottawa, ON, Canada