Children and Young People With Cancer, Pediatric Oncology

Development of Quality of Life in Adolescents and Young Adults With Cancer Using a Patient Support Smartphone App: Prepost Interventional Study

Line Bentsen, Signe Hanghøj, Maiken Hjerming, Mette Buur Bergmann, Marianne Thycosen, Anette Borup, Camilla Larsen, Helle Pappot

JMIR Cancer 2023 (Dec 04); 9:e49735

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Using IT to Improve Outcomes for Children Living With Cancer (SyMon-SAYS): Protocol for a Single-Institution Waitlist Randomized Controlled Trial

Jin-Shei Lai, Sally E Jensen, John Devin Peipert, Sandra A Mitchell, Sofia F Garcia, David Cella, Stewart Goldman, Alicia Lenzen

JMIR Res Protoc 2023 (Sep 08); 12:e50993

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Association Between Online Health Information–Seeking Behaviors by Caregivers and Delays in Pediatric Cancer: Mixed Methods Study in China

Jiamin Wang, Xuemei Zhen, Peter C Coyte, Di Shao, Ni Zhao, Lele Chang, Yujia Feng, Xiaojie Sun

J Med Internet Res 2023 (Aug 16); 25:e46953

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An mHealth Intervention to Improve Guardians’ Adherence to Children’s Follow-Up Care for Acute Lymphoblastic Leukemia in Tanzania (GuardiansCan Project): Protocol for a Development and Feasibility Study

Faraja S Chiwanga, Joanne Woodford, Golden M Masika, David A Richards, Victor Savi, Louise von Essen

JMIR Res Protoc 2023 (Aug 02); 12:e48799

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The Electronic Surviving Cancer Competently Intervention Program—a Psychosocial Digital Health Intervention for English- and Spanish-Speaking Parents of Children With Cancer: Protocol for Randomized Controlled Trial

Kimberly S Canter, Lee Ritterband, David R Freyer, Martha A Askins, Laura Bava, Caitlyn Loucas, Kamyar Arasteh, Wen You, Anne E Kazak

JMIR Res Protoc 2023 (Jun 02); 12:e46339

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A Mobile Self-Management App (CanSelfMan) for Children With Cancer and Their Caregivers: Usability and Compatibility Study

Hamed Mehdizadeh, Farkhondeh Asadi, Eslam Nazemi, Azim Mehrvar, Azade Yazdanian, Hassan Emami

JMIR Pediatr Parent 2023 (Mar 30); 6:e43867

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Developing an e-Prehabilitation System of Care for Young Adults Diagnosed With Cancer: User-Centered Design Study

Lisa McCann, Christopher Hewitt, Kathryn A McMillan

JMIR Cancer 2023 (Mar 30); 9:e41441

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Comorbidity Differences by Trajectory Groups as a Reference for Identifying Patients at Risk for Late Mortality in Childhood Cancer Survivors: Longitudinal National Cohort Study

Hyery Kim, Hae Reong Kim, Sung Han Kang, Kyung-Nam Koh, Ho Joon Im, Yu Rang Park

JMIR Public Health Surveill 2023 (Mar 24); 9:e41203

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The Health Care Utilization and Medical Costs in Long-Term Follow-Up of Children Diagnosed With Leukemia, Solid Tumor, or Brain Tumor: Population-Based Study Using the National Health Insurance Claims Data

James S Miser, Ben-Chang Shia, Yi-Wei Kao, Yen-Lin Liu, Shih-Yen Chen, Wan-Ling Ho

JMIR Public Health Surveill 2023 (Mar 02); 9:e42350

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Developing a Provincial Surveillance and Support System for Childhood Cancer Survivors: Multiphase User-Centered Design Study

Jennifer Shuldiner, Nida Shah, Catherine Reis, Ian Chalmers, Noah Ivers, Paul Nathan

JMIR Hum Factors 2022 (Sep 13); 9(3):e37606

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Development of a Self-management and Peer-Mentoring Intervention to Improve Transition Readiness Among Young Adult Survivors of Pediatric Cancer: Formative Qualitative Research Study

Adrienne S Viola, Kristine Levonyan-Radloff, Margaret Masterson, Sharon L Manne, Shawna V Hudson, Katie A Devine

JMIR Form Res 2022 (Aug 03); 6(8):e36323

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Antimicrobial Use in Pediatric Oncology and Hematology: Protocol for a Multicenter Point-Prevalence Study With Qualitative Expert Panel Assessment

Cihan Papan, Katharina Reifenrath, Katharina Last, Andishe Attarbaschi, Norbert Graf, Andreas H Groll, Johannes Huebner, Hans-Jürgen Laws, Thomas Lehrnbecher, Johannes Liese, Luise Martin, Tobias Tenenbaum, Stefan Weichert, Simon Vieth, Ulrich von Both, Markus Hufnagel, Arne Simon

JMIR Res Protoc 2022 (Jun 20); 11(6):e35774

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Co-creation of a Serious Game About Radiotherapy: Participatory Action Research Study With Children Treated for Cancer

Catarina Cederved, Jon Back, Charlotte Ångström-Brännström, Gustaf Ljungman, Gunn Engvall

JMIR Hum Factors 2022 (May 31); 9(2):e34476

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The Physical Activity and Fitness in Childhood Cancer Survivors (PACCS) Study: Protocol for an International Mixed Methods Study

Hanne C Lie, Sigmund Anderssen, Corina Silvia Rueegg, Truls Raastad, May Grydeland, Lene Thorsen, Trine Stensrud, Elisabeth Edvardsen, Marie Hamilton Larsen, Ingrid Kristin Torsvik, Lars Peder Bovim, Miriam Götte, Päivi Maria Lähteenmäki, Susi Kriemler, Hanne Bækgaard Larsen, Martin Kaj Fridh, Kristin Ørstavik, Henrik Brun, Iren Matthews, Else Hornset, Ellen Ruud

JMIR Res Protoc 2022 (Mar 08); 11(3):e35838

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Cardiovascular Health Status And Genetic Risk In Survivors of Childhood Neuroblastoma and Nephroblastoma Treated With Doxorubicin: Protocol of the Pharmacogenetic Part of the LESS-Anthra Cross-Sectional Cohort Study

Oliver Zolk, Annika von dem Knesebeck, Norbert Graf, Thorsten Simon, Barbara Hero, Hashim Abdul-Khaliq, Mohamed Abd El Rahman, Claudia Spix, Benjamin Mayer, Susanne Elsner, Judith Gebauer, Thorsten Langer

JMIR Res Protoc 2022 (Feb 17); 11(2):e27898

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Web-Based Research Trends on Child and Adolescent Cancer Survivors Over the Last 5 Years: Text Network Analysis and Topic Modeling Study

Hyun-Yong Kim, Kyung-Ah Kang, Suk-Jung Han, Jiyoung Chun

J Med Internet Res 2022 (Feb 01); 24(2):e32309

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Randomized Waitlist-Control Trial of a Web-Based Stress-Management and Resiliency Program for Adolescent and Young Adult Cancer Survivors: Protocol for the Bounce Back Study

Helen Mizrach, Brett Goshe, Elyse R Park, Christopher Recklitis, Joseph A Greer, Yuchiao Chang, Natasha Frederick, Annah Abrams, Mary D Tower, Emily A Walsh, Mary Huang, Lisa Kenney, Alan Homans, Karen Miller, John Denninger, Ghazala Naheed Usmani, Jeffrey Peppercorn, Giselle K Perez

JMIR Res Protoc 2022 (Jan 26); 11(1):e34033

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Caregiver Acceptability of Mobile Phone Use for Pediatric Cancer Care in Tanzania: Cross-sectional Questionnaire Study

Kristin Schroeder, James Maiarana, Mwitasrobert Gisiri, Emma Joo, Charles Muiruri, Leah Zullig, Nestory Masalu, Lavanya Vasudevan

JMIR Pediatr Parent 2021 (Dec 08); 4(4):e27988

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Identification of Genetic Predispositions Related to Ionizing Radiation in Primary Human Skin Fibroblasts From Survivors of Childhood and Second Primary Cancer as Well as Cancer-Free Controls: Protocol for the Nested Case-Control Study KiKme

Manuela Marron, Lara Kim Brackmann, Heike Schwarz, Willempje Hummel-Bartenschlager, Sebastian Zahnreich, Danuta Galetzka, Iris Schmitt, Christian Grad, Philipp Drees, Johannes Hopf, Johanna Mirsch, Peter Scholz-Kreisel, Peter Kaatsch, Alicia Poplawski, Moritz Hess, Harald Binder, Thomas Hankeln, Maria Blettner, Heinz Schmidberger

JMIR Res Protoc 2021 (Nov 11); 10(11):e32395

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Natural Language Processing and Machine Learning Methods to Characterize Unstructured Patient-Reported Outcomes: Validation Study

Zhaohua Lu, Jin-ah Sim, Jade X Wang, Christopher B Forrest, Kevin R Krull, Deokumar Srivastava, Melissa M Hudson, Leslie L Robison, Justin N Baker, I-Chan Huang

J Med Internet Res 2021 (Nov 03); 23(11):e26777

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