This paper is in the following e-collection/theme issue:

Social Media for Parenting (44) Peer-to-Peer Support and Online Communities (713) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1787) Ethics, Privacy, and Legal Issues (548) Chronic Disease Self-Management in Childhood and Adolescence (161) Parenting (285) Pediatrics (231)

Published on in Vol 5, No 1 (2022): Jan-Mar

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/31411, first published .
Facebook Support Groups for Pediatric Rare Diseases: Cross-Sectional Study to Investigate Opportunities, Limitations, and Privacy Concerns

Facebook Support Groups for Pediatric Rare Diseases: Cross-Sectional Study to Investigate Opportunities, Limitations, and Privacy Concerns

Facebook Support Groups for Pediatric Rare Diseases: Cross-Sectional Study to Investigate Opportunities, Limitations, and Privacy Concerns

Authors of this article:

Sarah Catrin Titgemeyer1 Author Orcid Image ;   Christian P Schaaf2 Author Orcid Image
Article Authors Cited by (14) Tweetations (7) Metrics
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JMIR Publications JMIR Publications @jmirpub

JMIR Pediatrics: Facebook Support Groups for #Pediatric Rare Diseases: Cross-Sectional Study to Investigate Opportu… https://t.co/0kQkuK0qh4

2:56 PM · Jan 06, 2022

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JMIR Pediatrics and Parenting JMIR Pediatrics and Parenting @JMIR_Pediatrics

RT @jmirpub: JMIR Pediatrics: Facebook Support Groups for #Pediatric Rare Diseases: Cross-Sectional Study to Investigate Opportunities, Lim…

2:56 PM · Jan 06, 2022

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Jean Gabriel Jeannot Jean Gabriel Jeannot @jgjeannot

Les groupes Facebook pour les maladies rares touchant les enfants, utiles ? https://t.co/DxHDMn0zRq

4:18 PM · Jan 06, 2022

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Christian Schaaf Christian Schaaf @cpschaaf

Facebook support groups play an increasingly important role in connecting individuals with rare diseases. This come… https://t.co/0uL4fvSd11

11:04 PM · Jan 08, 2022

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Jeanette Erdmann Jeanette Erdmann @JeanetteErdmann

I can only confirm this from my own experience. I was actually rather critical of Facebook, but after my diagnosis… https://t.co/m2uJzjbC3C

11:18 PM · Jan 08, 2022

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Alisdair McNeill Alisdair McNeill @am_sheffgenet

RT @cpschaaf: Facebook support groups play an increasingly important role in connecting individuals with rare diseases. This comes with gre…

11:21 PM · Jan 08, 2022

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se-atlas se-atlas @se_atlas

Über Facebook können Betroffene von #SelteneErkrankungen weltweit zueinanderfinden und sich austauschen. Das ist ei… https://t.co/csjffrZkdX

9:04 AM · Jan 09, 2022

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ERN-LUNG ERN-LUNG @ErnLung

RT @se_atlas: Über Facebook können Betroffene von #SelteneErkrankungen weltweit zueinanderfinden und sich austauschen. Das ist eine sehr gr…

8:20 PM · Jan 09, 2022

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