This paper is in the following e-collection/theme issue:

Social Media for Parenting (44) Peer-to-Peer Support and Online Communities (720) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1793) Consumer & Patient Education and Shared-Decision Making (766) Ethics, Privacy, and Legal Issues (551) Parenting (286) Recruitment of Research Participants (346) Birth Defects (15)

Published on in Vol 4, No 4 (2021): Oct-Dec

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/18483, first published .
Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study

Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study

Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study

Authors of this article:

Marlene Sinclair1 Author Orcid Image ;   Julie E M McCullough1 Author Orcid Image ;   David Elliott2 Author Orcid Image ;   Paula Braz3 Author Orcid Image ;   Clara Cavero-Carbonell4 Author Orcid Image ;   Lesley Dornan1 Author Orcid Image ;   Anna Jamry-Dziurla5 Author Orcid Image ;   Ana João Santos3, 6 Author Orcid Image ;   Anna Latos-Bieleńska5 Author Orcid Image ;   Ausenda Machado3 Author Orcid Image ;   Lucía Páramo-Rodríguez4 Author Orcid Image
Article Authors Cited by (3) Tweetations (17) Metrics
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JMIR Publications JMIR Publications @jmirpub

JMIR Pediatrics: Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of… https://t.co/VYQbcA5Ikf

2:24 PM · Nov 15, 2021

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JMIR Publications JMIR Publications @jmirpub

JMIR Pediatrics: Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of… https://t.co/VYQbcA5Ikf

2:24 PM · Nov 15, 2021

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JMIR Pediatrics and Parenting JMIR Pediatrics and Parenting @JMIR_Pediatrics

RT @jmirpub: JMIR Pediatrics: Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of #Children With Con…

2:24 PM · Nov 15, 2021

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JMIR Pediatrics and Parenting JMIR Pediatrics and Parenting @JMIR_Pediatrics

RT @jmirpub: JMIR Pediatrics: Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of #Children With Con…

2:24 PM · Nov 15, 2021

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David ???????? ???????? ???????? #StandWithUkraine ???????? David ???????? ???????? ???????? #StandWithUkraine ???????? @davidredefined

Latest peer reviewed academic publication: https://t.co/2UhHjz13h5 Very proud. My first publication was in May 198… https://t.co/UjfNPQHChb

10:07 AM · Nov 17, 2021

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David ???????? ???????? ???????? #StandWithUkraine ???????? David ???????? ???????? ???????? #StandWithUkraine ???????? @davidredefined

Latest peer reviewed academic publication: https://t.co/2UhHjz13h5 Very proud. My first publication was in May 198… https://t.co/UjfNPQHChb

10:07 AM · Nov 17, 2021

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Julie E M McCullough Julie E M McCullough @jem_mccullough

Delighted to have this research published. Lots of learning that will hopefully help other researchers, but it woul… https://t.co/LtJre7PXNl

3:51 PM · Nov 19, 2021

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Julie E M McCullough Julie E M McCullough @jem_mccullough

Delighted to have this research published. Lots of learning that will hopefully help other researchers, but it woul… https://t.co/LtJre7PXNl

3:51 PM · Nov 19, 2021

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Rachel Black Rachel Black @Rachel_Black742

???? Fantastic piece of new research! Congratulations to all involved ???????????????? https://t.co/nfbZlat4pZ

4:21 PM · Nov 19, 2021

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Rachel Black Rachel Black @Rachel_Black742

???? Fantastic piece of new research! Congratulations to all involved ???????????????? https://t.co/nfbZlat4pZ

4:21 PM · Nov 19, 2021

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Lucía Lucía @_LuciaParamo

Thank for all your work @jem_mccullough ???? https://t.co/RJOPUpm0f2

5:09 PM · Nov 19, 2021

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Lucía Lucía @_LuciaParamo

Thank for all your work @jem_mccullough ???? https://t.co/RJOPUpm0f2

5:09 PM · Nov 19, 2021

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Dr Deborah Muldrew Dr Deborah Muldrew @DrDebMuldrew

RT @jem_mccullough: Delighted to have this research published. Lots of learning that will hopefully help other researchers, but it would ne…

8:49 PM · Nov 19, 2021

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Dr Deborah Muldrew Dr Deborah Muldrew @DrDebMuldrew

RT @jem_mccullough: Delighted to have this research published. Lots of learning that will hopefully help other researchers, but it would ne…

8:49 PM · Nov 19, 2021

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Doctoral Midwifery Doctoral Midwifery @OfficialDMRS

RT @jem_mccullough: Delighted to have this research published. Lots of learning that will hopefully help other researchers, but it would ne…

9:00 PM · Nov 19, 2021

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Doctoral Midwifery Doctoral Midwifery @OfficialDMRS

RT @jem_mccullough: Delighted to have this research published. Lots of learning that will hopefully help other researchers, but it would ne…

9:00 PM · Nov 19, 2021

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David ???????? ???????? ???????? #StandWithUkraine ???????? David ???????? ???????? ???????? #StandWithUkraine ???????? @davidredefined

RT @jem_mccullough: Delighted to have this research published. Lots of learning that will hopefully help other researchers, but it would ne…

9:10 PM · Nov 19, 2021

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David ???????? ???????? ???????? #StandWithUkraine ???????? David ???????? ???????? ???????? #StandWithUkraine ???????? @davidredefined

RT @jem_mccullough: Delighted to have this research published. Lots of learning that will hopefully help other researchers, but it would ne…

9:10 PM · Nov 19, 2021

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Mary Heston Mary Heston @maryheston

Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital… https://t.co/o8ozgHzrxI

3:42 AM · Nov 20, 2021

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Mary Heston Mary Heston @maryheston

Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital… https://t.co/o8ozgHzrxI

3:42 AM · Nov 20, 2021

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Clara Cavero Clara Cavero @ClaCCC

RT @jem_mccullough: Delighted to have this research published. Lots of learning that will hopefully help other researchers, but it would ne…

3:19 PM · Nov 22, 2021

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Clara Cavero Clara Cavero @ClaCCC

RT @jem_mccullough: Delighted to have this research published. Lots of learning that will hopefully help other researchers, but it would ne…

3:19 PM · Nov 22, 2021

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marlene sinclair marlene sinclair @prof_marl

A paper worth reading. Delighted to have this research published. Thanks to ConnectEpeople team and parents and Dr… https://t.co/p888szI9bZ

9:15 AM · Nov 24, 2021

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marlene sinclair marlene sinclair @prof_marl

A paper worth reading. Delighted to have this research published. Thanks to ConnectEpeople team and parents and Dr… https://t.co/p888szI9bZ

9:15 AM · Nov 24, 2021

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Doctoral Midwifery Doctoral Midwifery @OfficialDMRS

Valuable new paper sharing the ethical, technical and practical issues of setting up an online research community f… https://t.co/kymIOLVs1s

9:33 AM · Nov 24, 2021

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Doctoral Midwifery Doctoral Midwifery @OfficialDMRS

Valuable new paper sharing the ethical, technical and practical issues of setting up an online research community f… https://t.co/kymIOLVs1s

9:33 AM · Nov 24, 2021

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Julie E M McCullough Julie E M McCullough @jem_mccullough

RT @OfficialDMRS: Valuable new paper sharing the ethical, technical and practical issues of setting up an online research community for par…

9:10 PM · Nov 24, 2021

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Julie E M McCullough Julie E M McCullough @jem_mccullough

RT @OfficialDMRS: Valuable new paper sharing the ethical, technical and practical issues of setting up an online research community for par…

9:10 PM · Nov 24, 2021

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Karen charnley Karen charnley @charnley_k

RT @jem_mccullough: Delighted to have this research published. Lots of learning that will hopefully help other researchers, but it would ne…

2:35 PM · Dec 02, 2021

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Karen charnley Karen charnley @charnley_k

RT @jem_mccullough: Delighted to have this research published. Lots of learning that will hopefully help other researchers, but it would ne…

2:35 PM · Dec 02, 2021

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All Ireland Institute of Hospice & Palliative Care All Ireland Institute of Hospice & Palliative Care @AIIHPC

RT @jem_mccullough: Delighted to have this research published. Lots of learning that will hopefully help other researchers, but it would ne…

11:48 AM · Jan 17, 2022

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All Ireland Institute of Hospice & Palliative Care All Ireland Institute of Hospice & Palliative Care @AIIHPC

RT @jem_mccullough: Delighted to have this research published. Lots of learning that will hopefully help other researchers, but it would ne…

11:48 AM · Jan 17, 2022

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