This paper is in the following e-collection/theme issue:

Social Media for Parenting (41) Peer-to-Peer Support and Online Communities (652) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1666) Consumer & Patient Education and Shared-Decision Making (695) Ethics, Privacy, and Legal Issues (494) Parenting (270) Recruitment of Research Participants (305) Birth Defects (15)

Published on in Vol 4, No 4 (2021): Oct-Dec

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/18483, first published .
Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study

Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study

Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study

Authors of this article:

Marlene Sinclair1 Author Orcid Image ;   Julie E M McCullough1 Author Orcid Image ;   David Elliott2 Author Orcid Image ;   Paula Braz3 Author Orcid Image ;   Clara Cavero-Carbonell4 Author Orcid Image ;   Lesley Dornan1 Author Orcid Image ;   Anna Jamry-Dziurla5 Author Orcid Image ;   Ana João Santos3, 6 Author Orcid Image ;   Anna Latos-Bieleńska5 Author Orcid Image ;   Ausenda Machado3 Author Orcid Image ;   Lucía Páramo-Rodríguez4 Author Orcid Image
Article Authors Cited by (3) Tweetations (17) Metrics

Marlene Sinclair   1 , BSc, MEd, PGDipEd, RM, PhD ;   Julie E M McCullough   1 , BSc, PGDip, PhD ;   David Elliott   2 , BSc, MBA, PhD ;   Paula Braz   3 , MSc ;   Clara Cavero-Carbonell   4 , BSPharm, MPH, PhD ;   Lesley Dornan   1 , BSc, PhD, SCPHN, HV, RN ;   Anna Jamry-Dziurla   5 , MSc ;   Ana João Santos   3, 6 , PhD ;   Anna Latos-Bieleńska   5 , MD, PhD ;   Ausenda Machado   3 , MSc ;   Lucía Páramo-Rodríguez   4 , BA, MA

1 Institute of Nursing and Health Research, Ulster University, Northern Ireland, United Kingdom

2 Redburn Solutions Ltd, Belfast, United Kingdom

3 Epidemiology Department, National Institute of Health Doctor Ricardo Jorge, Lisbon, Portugal

4 Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain

5 Department of Medical Genetics, Poznan University of Medical Sciences, Poznan, Poland

6 Public Health Research Centre, National School of Public Health, Nova University Lisbon, Lisbon, Portugal

Corresponding Author:

  • Marlene Sinclair, BSc, MEd, PGDipEd, RM, PhD
  • Institute of Nursing and Health Research
  • Ulster University
  • Shore Road, Newtownabbey
  • Northern Ireland, BT37 0QB
  • United Kingdom
  • Phone: 44 02890368118
  • Email: m.sinclair1@ulster.ac.uk