Published on in Vol 3, No 2 (2020): Jul-Dec

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/21694, first published .
Facebook Support Groups for Rare Pediatric Diseases: Quantitative Analysis

Facebook Support Groups for Rare Pediatric Diseases: Quantitative Analysis

Facebook Support Groups for Rare Pediatric Diseases: Quantitative Analysis

JMIR Pediatrics: Facebook Support Groups for Rare #Pediatric Diseases: Quantitative Analysis https://t.co/kU7VaYpatM https://t.co/WHhZjgGwBI

3:07 PM · Nov 19, 2020

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RT @jmirpub: JMIR Pediatrics: Facebook Support Groups for Rare #Pediatric Diseases: Quantitative Analysis https://t.co/kU7VaYpatM https://t…

3:18 PM · Nov 19, 2020

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Did you know that more than 6000 Facebook support groups exist for rare genetic disorders of childhood onset?… https://t.co/QzxkcPnLxj

3:31 PM · Nov 19, 2020

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Rare disease community - how important are Facebook groups for you as a means to connect with other families?… https://t.co/TsVRrbkf6o

3:41 PM · Nov 19, 2020

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RT @jmirpub: JMIR Pediatrics: Facebook Support Groups for Rare #Pediatric Diseases: Quantitative Analysis https://t.co/kU7VaYpatM https://t…

3:55 PM · Nov 19, 2020

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RT @cpschaaf: Rare disease community - how important are Facebook groups for you as a means to connect with other families? https://t.co/xr…

6:51 PM · Nov 19, 2020

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RT @cpschaaf: Did you know that more than 6000 Facebook support groups exist for rare genetic disorders of childhood onset? https://t.co/xr…

8:04 PM · Nov 19, 2020

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RT @cpschaaf: Did you know that more than 6000 Facebook support groups exist for rare genetic disorders of childhood onset? https://t.co/xr…

8:28 PM · Nov 19, 2020

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RT @cpschaaf: Did you know that more than 6000 Facebook support groups exist for rare genetic disorders of childhood onset? https://t.co/xr…

8:42 PM · Nov 19, 2020

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RT @cpschaaf: Did you know that more than 6000 Facebook support groups exist for rare genetic disorders of childhood onset? https://t.co/xr…

8:51 AM · Nov 20, 2020

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RT @cpschaaf: Did you know that more than 6000 Facebook support groups exist for rare genetic disorders of childhood onset? https://t.co/xr…

9:20 AM · Nov 20, 2020

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RT @cpschaaf: Did you know that more than 6000 Facebook support groups exist for rare genetic disorders of childhood onset? https://t.co/xr…

9:21 AM · Nov 20, 2020

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RT @cpschaaf: Did you know that more than 6000 Facebook support groups exist for rare genetic disorders of childhood onset? https://t.co/xr…

10:22 AM · Nov 20, 2020

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RT @cpschaaf: Did you know that more than 6000 Facebook support groups exist for rare genetic disorders of childhood onset? https://t.co/xr…

11:56 AM · Nov 20, 2020

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RT @cpschaaf: Did you know that more than 6000 Facebook support groups exist for rare genetic disorders of childhood onset? https://t.co/xr…

12:35 PM · Nov 20, 2020

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RT @cpschaaf: Did you know that more than 6000 Facebook support groups exist for rare genetic disorders of childhood onset? https://t.co/xr…

6:02 PM · Nov 20, 2020

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RT @cpschaaf: Did you know that more than 6000 Facebook support groups exist for rare genetic disorders of childhood onset? https://t.co/xr…

8:51 AM · Nov 21, 2020

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Many Simons Searchlight participants use our private Facebook groups to connect with others and learn more about th… https://t.co/8stnRLxJMw

5:33 PM · Nov 23, 2020

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Lots of folk diss FB and look down on those that use it - for 'rare' parents I can categorically state FB is (no ex… https://t.co/ECdfwxPJFL

10:12 PM · Nov 23, 2020

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No FB around when Miss Aine was diagnosed in 1998. No connecting, no chat, no knowledge, no awareness, no nothing.… https://t.co/sF8f15Pn8L

10:26 PM · Nov 23, 2020

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RT @22Q11_Ireland: Lots of folk diss FB and look down on those that use it - for 'rare' parents I can categorically state FB is (no exagger…

10:47 PM · Nov 23, 2020

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