This paper is in the following e-collection/theme issue:

Children and Young People With Cancer, Pediatric Oncology (66) Consumer & Patient Education and Shared-Decision Making (761) Pediatrics (142)

Published on in Vol 1, No 2 (2018): Jul-Dec

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/10463, first published .
Fertility Preservation in Children and Adolescents With Cancer: Pilot of a Decision Aid for Parents of Children and Adolescents With Cancer

Fertility Preservation in Children and Adolescents With Cancer: Pilot of a Decision Aid for Parents of Children and Adolescents With Cancer

Fertility Preservation in Children and Adolescents With Cancer: Pilot of a Decision Aid for Parents of Children and Adolescents With Cancer

Authors of this article:

Catherine Allingham1, 2 Author Orcid Image ;   Lynn Gillam3, 4 Author Orcid Image ;   Maria McCarthy5, 6 Author Orcid Image ;   Margaret Zacharin6, 7 Author Orcid Image ;   Sadunee Jayasuriya1, 8 Author Orcid Image ;   Yves Heloury9 Author Orcid Image ;   Lisa Orme10 Author Orcid Image ;   Michael Sullivan10 Author Orcid Image ;   Michelle Peate1 Author Orcid Image ;   Yasmin Jayasinghe1, 2 Author Orcid Image
Article Authors Cited by (35) Tweetations (22) Metrics

Journals

  1. Nahata L, Anazodo A, Cherven B, Logan S, Meacham L, Meade C, Zarnegar‐Lumley S, Quinn G. Optimizing health literacy to facilitate reproductive health decision‐making in adolescent and young adults with cancer. Pediatric Blood & Cancer 2023;70(S5) View
  2. Nakayama H, Toh Y, Fujishita M, Nakagama H. Present status of support for adolescent and young adult cancer patients in member hospitals of Japanese Association of Clinical Cancer Centers. Japanese Journal of Clinical Oncology 2020;50(11):1282 View
  3. Robertson E, Cohen J, Signorelli C, Grant D, Fardell J, Wakefield C. What instruments should we use to assess paediatric decision-making interventions? A narrative review. Journal of Child Health Care 2020;24(3):458 View
  4. Robertson E, Wakefield C, Cohn R, Battisti R, Donoghoe M, Ziegler D, Fardell J, Mitchell R, O'Brien T. Piloting a parent and patient decision aid to support clinical trial decision making in childhood cancer. Psycho-Oncology 2019;28(7):1520 View
  5. Korte E, Schilling R, Balcerek M, Campbell H, Dirksen U, Herrmann G, Kepakova K, Kepak T, Klco‐Brosius S, Kruseova J, Kunstreich M, Lackner H, Langer T, Panasiuk A, Stefanowicz J, Strauß G, Ranft A, Byrne J, Goldbeck L, Borgmann‐Staudt A. Fertility education for adolescent cancer patients: Gaps in current clinical practice in Europe. European Journal of Cancer Care 2020;29(5) View
  6. Woodruff T, Ataman-Millhouse L, Acharya K, Almeida-Santos T, Anazodo A, Anderson R, Appiah L, Bader J, Becktell K, Brannigan R, Breech L, Bourlon M, Bumbuliene Ž, Burns K, Campo-Engelstein L, Campos J, Centola G, Chehin M, Chen D, De Vos M, Duncan F, El-Damen A, Fair D, Famuyiwa Y, Fechner P, Fontoura P, Frias O, Gerkowicz S, Ginsberg J, Gracia C, Goldman K, Gomez-Lobo V, Hazelrigg B, Hsieh M, Hoyos L, Hoyos-Martinez A, Jach R, Jassem J, Javed M, Jayasinghe Y, Jeelani R, Jeruss J, Kaul-Mahajan N, Keim-Malpass J, Ketterl T, Khrouf M, Kimelman D, Kusuhara A, Kutteh W, Laronda M, Lee J, Lehmann V, Letourneau J, McGinnis L, McMahon E, Meacham L, Mijangos M, Moravek M, Nahata L, Ogweno G, Orwig K, Pavone M, Peccatori F, Pesce R, Pulaski H, Quinn G, Quintana R, Quintana T, de Carvalho B, Ramsey-Goldman R, Reinecke J, Reis F, Rios J, Rhoton-Vlasak A, Rodriguez-Wallberg K, Roeca C, Rotz S, Rowell E, Salama M, Saraf A, Scarella A, Schafer-Kalkhoff T, Schmidt D, Senapati S, Shah D, Shikanov A, Shnorhavorian M, Skiles J, Smith J, Smith K, Sobral F, Stimpert K, Su H, Sugimoto K, Suzuki N, Thakur M, Victorson D, Viale L, Vitek W, Wallace W, Wartella E, Westphal L, Whiteside S, Wilcox L, Wyns C, Xiao S, Xu J, Zelinski M. A View from the past into our collective future: the oncofertility consortium vision statement. Journal of Assisted Reproduction and Genetics 2021;38(1):3 View
  7. Mulder R, Font-Gonzalez A, van Dulmen-den Broeder E, Quinn G, Ginsberg J, Loeffen E, Hudson M, Burns K, van Santen H, Berger C, Diesch T, Dirksen U, Giwercman A, Gracia C, Hunter S, Kelvin J, Klosky J, Laven J, Lockart B, Neggers S, Peate M, Phillips B, Reed D, Tinner E, Byrne J, Veening M, van de Berg M, Verhaak C, Anazodo A, Rodriguez-Wallberg K, van den Heuvel-Eibrink M, Asogwa O, Brownsdon A, Wallace W, Green D, Skinner R, Haupt R, Kenney L, Levine J, van de Wetering M, Tissing W, Paul N, Kremer L, Inthorn J, Anderson R, Barnbrock A, Beck J, Bos A, Calaminus G, Constine L, Demeestere I, Denzer C, Grabow D, di Iorgi N, Hoefgen H, Jahnukainen K, Kaatsch P, Kebudi R, Lambalk C, Langer T, Loonen J, Lorenzo A, Meacham L, Meissner A, Mitchell R, Nahata L, Ranft A, Dinkelman-Smit M, Stern C, Stutz-Grunder E, Tournaye H, van Dorp W, van Pelt A, de Vries A, Yu R. Communication and ethical considerations for fertility preservation for patients with childhood, adolescent, and young adult cancer: recommendations from the PanCareLIFE Consortium and the International Late Effects of Childhood Cancer Guideline Harmonization Group. The Lancet Oncology 2021;22(2):e68 View
  8. Canzona M, Victorson D, Murphy K, Clayman M, Patel B, Puccinelli‐Ortega N, McLean T, Harry O, Little‐Greene D, Salsman J. A conceptual model of fertility concerns among adolescents and young adults with cancer. Psycho-Oncology 2021;30(8):1383 View
  9. Kolbuck V, Sajwani A, Kyweluk M, Finlayson C, Gordon E, Chen D. Formative development of a fertility decision aid for transgender adolescents and young adults: a multidisciplinary Delphi consensus study. Journal of Assisted Reproduction and Genetics 2020;37(11):2805 View
  10. Glazer T, Schulte F. Barriers to Oncofertility Care among Female Adolescent Cancer Patients in Canada. Current Oncology 2022;29(3):1583 View
  11. Salama M, Nahata L, Jayasinghe Y, Gomez-Lobo V, Laronda M, Moravek M, Meacham L, Christianson M, Lambertini M, Anazodo A, Quinn G, Woodruff T. Pediatric oncofertility care in limited versus optimum resource settings: results from 39 surveyed centers in Repro-Can-OPEN Study Part I & II. Journal of Assisted Reproduction and Genetics 2023;40(3):443 View
  12. Rosati P, Crocoli A, Saulle R, Amato L, Brancaccio M, Mitrova Z, Ciliento G, Ciofi degli Atti M, Raponi M. Does letting adolescent and young adult inpatients share decisions in choosing the central-line insertion site reduce central-line-associated bloodstream infections? An empty systematic review. The Journal of Vascular Access 2024;25(1):51 View
  13. Shin Y, Park M, Yun B, Hahn S, Kwon S, Ahn W, Lyu C, Han J. Factors influencing perceived communication quality for successful fertility preservation counseling for adolescent and young adult cancer patients and their caregivers in Korea. Supportive Care in Cancer 2022;30(12):9751 View
  14. El Alaoui‐Lasmaili K, Nguyen‐Thi P, Demogeot N, Lighezzolo‐Alnot J, Gross M, Mansuy L, Chastagner P, Koscinski I. Fertility discussions and concerns in childhood cancer survivors, a systematic review for updated practice. Cancer Medicine 2023;12(5):6023 View
  15. Dephoure S, Cummings B. Decision aids as tools to facilitate shared decision making in neonatal care: A standardization analysis. Bioethics Open Research 2023;1:1 View
  16. Sandhu S, Hickey M, Lew R, Hammarberg K, Braat S, Agresta F, Parle A, Allingham C, Ledger W, Fisher J, Johnson L, Michelmore J, Summers F, Hart R, Norman R, Lieberman D, Anderson R, Peate M. The development and phase 1 evaluation of a Decision Aid for elective egg freezing. BMC Medical Informatics and Decision Making 2023;23(1) View
  17. Glackin A, Marino J, Peate M, McNeil R, Orme L, McCarthy M, Sawyer S. Experiences of Oncofertility Decision-Making and Care in a National Sample of Adolescent and Young Adult Cancer Patients and Parents. Journal of Adolescent and Young Adult Oncology 2024;13(1):170 View
  18. Plummer K, McCarthy M, Newall F, Manias E. The management of pain during pediatric hematopoietic stem cell transplantation: A qualitative study of contextual factors that influenced pain management practices. Pediatric Blood & Cancer 2023;70(11) View
  19. Ko J, Cheung C, Cheng H, Yung S, Ng T, Tin W, Yuen H, Lam M, Chan A, Fung S, Man V, Kwong A, Ng E. Knowledge, attitudes and intention on fertility preservation among breast cancer patients. Scientific Reports 2023;13(1) View
  20. Siegal A, Ferrer F, Herndon C, Wallis M, Schaeffer A, Malhotra N. Inter‐disciplinary provider development of an online, interactive adolescent varicocele decision aid prototype. Andrology 2024;12(2):429 View
  21. Guerrero K, Thomann J, Brandi K. Shared Decision Making in Obstetrics and Gynecology. Topics in Obstetrics & Gynecology 2020;40(7):1 View
  22. Pawłowski P, Ziętara K, Michalczyk J, Fryze M, Buchacz A, Zaucha-Prażmo A, Zawitkowska J, Torres A, Samardakiewicz M. Fertility Preservation in Children and Adolescents during Oncological Treatment—A Review of Healthcare System Factors and Attitudes of Patients and Their Caregivers. Cancers 2023;15(17):4393 View
  23. Dephoure S, Desai B, Cummings B. Decision aids as tools to facilitate shared decision making in neonatal care: A standardization analysis. Bioethics Open Research 2023;1:1 View
  24. Barnbrock A, Hamannt F, Salzmann-Manrique E, Rohm T, Lange S, Bader P, Jarisch A. Look at the future -perceptions of fertility counseling and decision-making among adolescents and their parents in the context of hematopoietic stem cell transplantation—experience of one major center for pediatric stem cell transplantation. Frontiers in Pediatrics 2023;11 View
  25. Affdal A, Salama M, Ravitsky V. Ethical, legal, social, and policy issues of ovarian tissue cryopreservation in prepubertal girls: a critical interpretive review. Journal of Assisted Reproduction and Genetics 2024;41(4):999 View
  26. McElhinney K, Kennedy T, Rowell E, Laronda M. A dozen years of ovarian tissue cryopreservation at a pediatric hospital: tracking program and patient metrics while adapting to increasing needs. F&S Reports 2024;5(2):197 View
  27. Lau L, Allingham C, Anazodo A, Sullivan M, Peate M, Hunter S, Stern C, Ryan A, Super L, Orme L, McCarthy M, Gook D, Lewin J, Marino J, Ryan J, Downie P, Manudhane R, Winstanley M, Pettit T, Lantsberg D, Irving H, Reid S, Heath J, Kabalan‐Baeza P, Wanaguru D, Moore L, Gillam L, Zacharin M, Assis M, Rozen G, Hunter T, Julania S, Sharwood E, Ameratunga D, Jayasinghe Y. The Australian New Zealand Consortium in Children, Adolescents, and Young Adults Oncofertility action plan. Pediatric Blood & Cancer 2024;71(7) View
  28. Kuntz H, Santucci J, Butts S, Dandekar S, Smink G, Van Scoy L, Rao P. Determinants of Decision Regret Regarding Fertility Preservation in Adolescent and Young Adult Cancer Survivors: A Systematic Review. Journal of Adolescent and Young Adult Oncology 2024;13(5):726 View
  29. Woods B, Bray L, Campbell S, Li P, Kazmerski T, Hovater C, Pitts L, Ladores S. Implementation and evaluation of a fertility preservation telehealth counseling intervention for males with cystic fibrosis. Journal of Cystic Fibrosis 2024;23(4):658 View
  30. Mottram R, Feltbower R, Jones G, Gelcich S, Rostron H, Allen M, Glaser A. From Storage to Survivorship: A Scoping Review of Young Adult Cancer Survivors’ Experiences and Preferences in Reproductive Survivorship Care After Fertility Tissue Preservation. Journal of Pediatric and Adolescent Gynecology 2025;38(1):26 View
  31. Jayasinghe Y, Ginsburg E. Oncofertility in Children and Adolescents. Obstetrics and Gynecology Clinics of North America 2024;51(4):711 View
  32. Makar K, Tran K, Brown W, Vercler C. Cleft-Related Revision Procedures: Surgeon Perspectives on Shared Decision-Making and a Decision Aid Prototype. The Cleft Palate Craniofacial Journal 2025 View
  33. Rodriguez-Wallberg K, Nilsson H, Folmerz M, Lundqvist E, Granberg L, Armuand G. Experiencing fertility preservation in adolescence – a qualitative interview study indicating gender disparities in AYAs diagnosed with cancer. Frontiers in Oncology 2025;15 View

Books/Policy Documents

  1. Poirot C. Principles and Practice of Ovarian Tissue Cryopreservation and Transplantation. View
  2. Benedict C, Walsh E, Penedo F. Psychological Aspects of Cancer. View