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Rare Diseases on the Internet: An Assessment of the Quality of Online Information

Frédéric Pauer, Svenja Litzkendorf, Jens Göbel, Holger Storf, Jan Zeidler, Johann-Matthias Graf von der Schulenburg

J Med Internet Res 2017;19(1):e23

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Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry

Raphael Scheible, Dennis Kadioglu, Stephan Ehl, Marco Blum, Martin Boeker, Michael Folz, Bodo Grimbacher, Jens Göbel, Christoph Klein, Alexandra Nieters, Stephan Rusch, Gerhard Kindle, Holger Storf

JMIR Med Inform 2020;8(10):e17420

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Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

Frédéric Pauer, Jens Göbel, Holger Storf, Svenja Litzkendorf, Ana Babac, Martin Frank, Verena Lührs, Franziska Schauer, Jörg Schmidtke, Lisa Biehl, Thomas OF Wagner, Frank Ückert, Johann-Matthias Graf von der Schulenburg, Tobias Hartz

Interact J Med Res 2016;5(3):e24

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Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study

Svenja Litzkendorf, Tobias Hartz, Jens Göbel, Holger Storf, Frédéric Pauer, Ana Babac, Verena Lührs, Leena Bruckner-Tuderman, Franziska Schauer, Jörg Schmidtke, Lisa Biehl, TOF Wagner, J-Matthias Graf von der Schulenburg, Martin Frank

JMIR Res Protoc 2018;7(9):e11248

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Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study

Svenja Litzkendorf, Tobias Hartz, Jens Göbel, Holger Storf, Frédéric Pauer, Ana Babac, Verena Lührs, Leena Bruckner-Tuderman, Franziska Schauer, Jörg Schmidtke, Lisa Biehl, TOF Wagner, J-Matthias Graf von der Schulenburg, Martin Frank

JMIR Res Protoc 2018;7(5):e112

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Changes Over Time in the Utilization of Disease-Related Internet Information in Newly Diagnosed Breast Cancer Patients 2007 to 2013

Christoph Kowalski, Eva Kahana, Kathrin Kuhr, Lena Ansmann, Holger Pfaff

J Med Internet Res 2014;16(8):e195

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An Internet-Based Self-Help Intervention for Skin Picking (SaveMySkin): Pilot Randomized Controlled Trial

Christina Gallinat, Markus Moessner, Holger A Haenssle, Julia K Winkler, Matthias Backenstrass, Stephanie Bauer

J Med Internet Res 2019;21(9):e15011

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Women’s Attitudes Toward Self-Monitoring of Their Pregnancy Using Noninvasive Electronic Devices: Cross-Sectional Multicenter Study

Katharina Schramm, Niklas Grassl, Juliane Nees, Janine Hoffmann, Holger Stepan, Thomas Bruckner, Markus W Haun, Imad Maatouk, Markus Haist, Timm C Schott, Christof Sohn, Sarah Schott

JMIR Mhealth Uhealth 2019;7(1):e11458

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Development of a Short Instrument for Measuring Health-Related Quality of Life in Oncological Patients for Clinical Use: Protocol for an Observational Study

Theresa Schrage, Mirja Görlach, Christian Stephan Betz, Carsten Bokemeyer, Nicolaus Kröger, Volkmar Mueller, Cordula Petersen, Andreas Krüll, Holger Schulz, Christiane Bleich

JMIR Res Protoc 2020;9(7):e17854

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Determinants of Patients’ Intention to Use the Online Inquiry Services Provided by Internet Hospitals: Empirical Evidence From China

Dehe Li, Yinhuan Hu, Holger Pfaff, Liuming Wang, Lu Deng, Chuntao Lu, Shixiao Xia, Siyu Cheng, Ximin Zhu, Xiaoyue Wu

J Med Internet Res 2020;22(10):e22716

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