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Use of Web-Based Surveys to Collect Long-Term Pediatric Outcomes in Patients With Twin-Twin Transfusion Syndrome Treated With Fetoscopic Laser Photocoagulation: Observational Study

Use of Web-Based Surveys to Collect Long-Term Pediatric Outcomes in Patients With Twin-Twin Transfusion Syndrome Treated With Fetoscopic Laser Photocoagulation: Observational Study

Twin-twin transfusion syndrome (TTTS) results from unbalanced vascular communications in a shared placenta between monochorionic diamniotic (MCDA) twins. Bidirectional vascular communications are present in up to 95% of MCDA twins and allow for a single, shared circulatory system [1]. However, in 9%‐15% of MCDA twins, unbalanced vascular communications produce a pathological state in which one fetus (the donor twin) overtransfuses the cotwin (the recipient) [2,3].

Eric Bergh, Kimberly Rennie, Jimmy Espinoza, Anthony Johnson, Ramesha Papanna

JMIR Pediatr Parent 2024;7:e60039

Usability of a Personal Air Pollution Monitor: Design-Feedback Iterative Cycle Study

Usability of a Personal Air Pollution Monitor: Design-Feedback Iterative Cycle Study

For the first cycle of the study, the twins came in for a study visit during which they received oral and written instructions on device use and for completing a daily wear log. The wear log was used to record wear time (start and stop times) for each day of the weeklong collection period. The log also provided space to record any issues that may have arisen with the device or any open-ended comments during the week of collection.

Glen E Duncan, Edmund Seto, Ally R Avery, Mike Oie, Graeme Carvlin, Elena Austin, Jeffry H Shirai, Jiayang He, Byron Ockerman, Igor Novosselov

JMIR Mhealth Uhealth 2018;6(12):e12023