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Lack of Diversity in Research on Females with Ehlers-Danlos Syndromes: Recruitment Protocol for a Quantitative Online Survey

Lack of Diversity in Research on Females with Ehlers-Danlos Syndromes: Recruitment Protocol for a Quantitative Online Survey

For this paper, the term EDS will be used to describe people with hypermobile EDS, hypermobility spectrum disorders, as well as other types of EDS. Not all people who have vaginas identify as female and the use of the terms “female” or “women” to describe all people with vaginas is inaccurate. However, for lack of a better term at this time, we will use the term female to describe people in this study.

Jennifer E Glayzer, Bethany C Bray, William H Kobak, Alana D Steffen, Judith M Schlaeger

JMIR Res Protoc 2024;13:e53646

Validation of an Electronic Visual Analog Scale App for Pain Evaluation in Children and Adolescents With Symptomatic Hypermobility: Cross-sectional Study

Validation of an Electronic Visual Analog Scale App for Pain Evaluation in Children and Adolescents With Symptomatic Hypermobility: Cross-sectional Study

Despite emerging evidence on psychometric validation of the digital VAS versions in pediatrics [3,10-13], the feasibility of the application of the e-VAS in children with symptomatic hypermobility conditions has not been reported. Generalized joint hypermobility (GJH) is a connective tissue condition characterized by an excessive range of motions that affects multiple joints [14].

Muhammad Maarj, Verity Pacey, Louise Tofts, Matthew Clapham, Xavier Gironès Garcia, Andrea Coda

JMIR Pediatr Parent 2022;5(4):e41930