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The project was deemed exempt from review by the WCG institutional review board because it does not meet the definition of human subjects research (federal regulation 45 CFR 46.102).
This analysis included deidentified data from a consumer database of at-home collected, mail-in thyroid tests (Everlywell, Inc). Consumers had independently purchased thyroid test collection kits.
J Med Internet Res 2023;25:e43707
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Perhaps the most widely used biometric information for human individualization is the friction ridge pattern on the fingertips, often referred to as fingerprints [3]. As with the face in head imaging, friction ridges are also recorded as part of the imaging data when a participant’s hand is imaged.
J Med Internet Res 2022;24(11):e38650
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Participatory Disease Surveillance Systems: Ethical Framework
Reference 31: Ethics in public health research: protecting human subjects: the role of community advisory Reference 38: Research on human biological materials: what consent is needed, and when New criteria regarding consent for human tissue research in the Declaration of Helsinki Reference 47: Consent to research involving human biological samples obtained during medical care Reference 54: Where are human subjects in big data research? The emerging ethics dividehuman
J Med Internet Res 2019;21(5):e12273
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Exploring Social Media Group Use Among Breastfeeding Mothers: Qualitative Analysis
Reference 1: Breastfeeding and the use of human milk: an analysis of the American Academy of Pediatrics Dept. of Health and Human Services. The surgeon general's call to action to support breastfeeding. Dept. of Health and Human Services, Office of the Surgeon General. 2011human
JMIR Pediatr Parent 2018;1(2):e11344
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Research Ethics in the European Influenzanet Consortium: Scoping Review
However, it is not known how national RECs judged and approved their respective studies; for instance, they could have considered the gathered personal health-related data from participants to be fully anonymized for which no informed consent is required or considered studies to be human subject research.
JMIR Public Health Surveill 2018;4(4):e67
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