e.g. mhealth
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While there appears to be a large volume of literature reporting on studies of psychosocial interventions for carers of patients with cancer, this body of work is complex and fragmented, and it is challenging to draw clear conclusions about the evidence for specific types of programs or carer groups. The result is that carers remain undersupported, with limited evidence of the effective interventional approaches.
JMIR Res Protoc 2024;13:e56403
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Instead of answering, the patient turned to the carer (refer to screengrab 2 in Figure 5), softly asking “what?” (indicated with the degree symbols) and expecting the carer to perform an interactional repair on the physician’s question. The carer (offscreen) repeated the physician’s verification question in line 8.
J Med Internet Res 2024;26:e51695
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If I were a male carer [...] I might feel slightly alienated [...]. So, the fact that they are not represented is not particularly ideal.
Concern about complex wording was a common theme in caregivers’ and staffs’ reactions to Pi B and redesign recommendations. These connect with the TFA dimensions of intervention: Burden, Coherence, Self-Efficacy, and Effectiveness. Some struggled to interpret the step-by-step instructions in Pi B Action Plans.
Caregiver: So, [...]
JMIR Form Res 2024;8:e52389
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Online Support Groups for Family Caregivers: Scoping Review
This was evident by participants making a distinction between themselves as a carer and as a person, using the space to state their own needs and as a safe space where they could express things that they would not say to family members for fear of negative reactions.
The OSGs provided changes in the identity work of family caregivers in 2 key areas: (1) disrupted family relationships or significant other relationships signifying “a new us” [53] and (2) normalization of atypical patterns of behavior [52].
J Med Internet Res 2023;25:e46858
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Both the REACT intervention and access to a digital resource directory were associated with significant increases in carer well-being and reduction in distress; however, there was no difference between the 2 trial arms in these outcomes at either 12 or 24 weeks of follow-up. Of the 800 participants in the REACT trial, 399 (49.8%) were in the active intervention arm, with access to a peer-supported moderated forum. Here, we report on their patterns of REACT forum use during the trial.
JMIR Ment Health 2022;9(10):e35837
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