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Using a Patient Portal to Increase Enrollment in a Newborn Screening Research Study: Observational Study

Using a Patient Portal to Increase Enrollment in a Newborn Screening Research Study: Observational Study

The process of identifying women within UNCH to be sent an invitation to participate in Early Check via my UNC Chart began with a computable phenotype, a data query that “use[s] EHR data exclusively to describe clinical characteristics, events, and service patterns for a specific patient population [40].” UNCH’s enterprise data warehouse, the Carolina Data Warehouse for Health (CDWH), was queried using the computable phenotype to identify invitation recipients.

Lisa M Gehtland, Ryan S Paquin, Sara M Andrews, Adam M Lee, Angela Gwaltney, Martin Duparc, Emily R Pfaff, Donald B Bailey Jr

JMIR Pediatr Parent 2022;5(1):e30941