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“Crying in the Wilderness”—The Use of Web-Based Support in Telomere Biology Disorders: Thematic Analysis

“Crying in the Wilderness”—The Use of Web-Based Support in Telomere Biology Disorders: Thematic Analysis

Melissa, a caregiver, described feeling encouraged and comforted by generations of patients with TBDs and their caregivers on the internet: I know there’s a lot of families on there ... so they’ll be there [online] ... answering questions for other parents that ... are just getting diagnosed or just have general questions. Several participants noted they felt less safety in web-based networks compared to in-person relationships because it was harder to control personal boundaries.

Emily Eidenier Pearce, Alina Majid, Toniya Brown, Rowan Forbes Shepherd, Camella Rising, Catherine Wilsnack, Ashley S Thompson, Melissa B Gilkey, Kurt M Ribisl, Allison J Lazard, Paul KJ Han, Allison Werner-Lin, Sadie P Hutson, Sharon A Savage

JMIR Form Res 2024;8:e64343

Using Telehealth to Deliver Primary Care to Adolescents During and After the COVID-19 Pandemic: National Survey Study of US Primary Care Professionals

Using Telehealth to Deliver Primary Care to Adolescents During and After the COVID-19 Pandemic: National Survey Study of US Primary Care Professionals

On average, PCPs reported more advantages than disadvantages of their recent adolescent telehealth use (mean=3.2 of 5 advantages, SD 1.3, vs 2.1 of 5 disadvantages, SD 0.9; P Perceived advantages (A) and disadvantages (B) of adolescent telehealth by primary care providers (n=929). Most PCPs reported positive attitudes toward adolescent telehealth.

Melissa B Gilkey, Wei Yi Kong, Qian Huang, Brigid K Grabert, Peyton Thompson, Noel T Brewer

J Med Internet Res 2021;23(9):e31240