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Delivering a Home-Based Exercise Program to Youth With Osteogenesis Imperfecta: Protocol for a Comparative-Approach Study

In contrast, Gagnon et al [13] used a follow-up telemedicine approach for the delivery of a 12-week home exercise program for youth with arthrogryposis multiplex congenita, where clinicians conducted follow-ups with study participants every 3 weeks. The results showed a 68% adherence rate and a 64% completion rate, which was sufficient for most study participants to achieve their goals [13].

Georgia Powell, Marianne Gagnon, Svetlana Komarova, Frank Rauch, Louis-Nicolas Veilleux

JMIR Res Protoc 2023;12:e40262

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Using Telerehabilitation to Deliver a Home Exercise Program to Youth With Arthrogryposis: Single Cohort Pilot Study

The methods used for the pilot study are described in detail in Gagnon et al [19]. At the end of the 12-week HEP, the participants underwent a final assessment, with the occupational therapist and physical therapist using the same outcome measures as those used during the initial assessment, and they completed the same web-based questionnaires with the addition of 19 closed-ended and 4 open-ended questions on their satisfaction with the HEP.

Marianne Gagnon, Gabriela Marino Merlo, Rita Yap, Jessica Collins, Caroline Elfassy, Bonita Sawatzky, Jacquelyn Marsh, Reggie Hamdy, Louis-Nicolas Veilleux, Noémi Dahan-Oliel