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Moderators’ Experiences of the Safety and Effectiveness of Patient Engagement in an Asthma Online Health Community: Exploratory Qualitative Interview Study

Moderators’ Experiences of the Safety and Effectiveness of Patient Engagement in an Asthma Online Health Community: Exploratory Qualitative Interview Study

Patient moderators of online support groups were the focus of the study conducted by Coulson and Shaw [13]. They highlighted several challenges, including the time commitment required for moderation, dealing with trolls and “nasty emails,” and striking the right balance between their nurturing role and enforcing the rules.

Helen E Wood, Georgios Dimitrios Karampatakis, Neil S Coulson, Nishanth Sastry, Xiancheng Li, Stephanie J C Taylor, Chris J Griffiths, Anna De Simoni

J Med Internet Res 2025;27:e58167

Understanding the Engagement and Interaction of Superusers and Regular Users in UK Respiratory Online Health Communities: Deep Learning–Based Sentiment Analysis

Understanding the Engagement and Interaction of Superusers and Regular Users in UK Respiratory Online Health Communities: Deep Learning–Based Sentiment Analysis

We considered different aggregations of content types as follows: (1) , the AVS of all posts of a set of users in v; that is, either regular users (U) or superusers (S); (2) , the AVS of level-0 posts of users in v; (3) , the AVS of all replies given by users in v; (4) , the AVS of level-1 replies given by users in v; and (5) , the AVS of level-2+ replies given by users in v.

Xiancheng Li, Emanuela Vaghi, Gabriella Pasi, Neil S Coulson, Anna De Simoni, Marco Viviani, AD HOC Group

J Med Internet Res 2025;27:e56038

Exploring Social Support in an Online Support Community for Tourette Syndrome and Tic Disorders: Analysis of Postings

Exploring Social Support in an Online Support Community for Tourette Syndrome and Tic Disorders: Analysis of Postings

For instance, Coulson and colleagues [39] studied the provision of social support in messages posted to a Huntington disease online community and reported that group members frequently offered informational (advice, referral, teaching, situation appraisal), emotional (relationship, confidentiality, affection, sympathy, validation/empathy, encouragement, prayer, relief of blame), network (access, presence, companionship, express willingness), and esteem (compliment, anchorage) support, while comparatively few

Mercédesz Judit Soós, Neil S Coulson, E Bethan Davies

J Med Internet Res 2022;24(10):e34403

Using Online Support Communities for Tourette Syndrome and Tic Disorders: Online Survey of Users’ Experiences

Using Online Support Communities for Tourette Syndrome and Tic Disorders: Online Survey of Users’ Experiences

As there had been previous little research exploring online support communities for TDs/TS, it was felt that the criteria outlined by Coulson et al [23] provided a methodical way to identify suitable and active online support communities for this study.

Victoria Perkins, Neil S Coulson, E Bethan Davies

J Med Internet Res 2020;22(11):e18099

Evaluating a Theoretically Informed and Cocreated Mobile Health Educational Intervention for First-Time Hearing Aid Users: Qualitative Interview Study

Evaluating a Theoretically Informed and Cocreated Mobile Health Educational Intervention for First-Time Hearing Aid Users: Qualitative Interview Study

Coulson et al [31] subsequently argued that the Capability, Opportunity, Motivation-Behavior (COM-B) model, a contemporary supratheory of behavior change, is better suited to understanding and describing behavior. The COM-B model proposes that for an individual to engage in a specific health-related behavior (B), they must have physical and psychological capability (C), physical and social opportunity (O), and automatic and reflective motivation (M).

David W Maidment, Rachel Heyes, Rachel Gomez, Neil S Coulson, Heather Wharrad, Melanie A Ferguson

JMIR Mhealth Uhealth 2020;8(8):e17193