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Quality and Misinformation About Health Conditions in Online Peer Support Groups: Scoping Review
J Med Internet Res 2025;27:e71140
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Patient moderators of online support groups were the focus of the study conducted by Coulson and Shaw [13]. They highlighted several challenges, including the time commitment required for moderation, dealing with trolls and “nasty emails,” and striking the right balance between their nurturing role and enforcing the rules.
J Med Internet Res 2025;27:e58167
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We considered different aggregations of content types as follows: (1)
, the AVS of all posts of a set of users in v; that is, either regular users (U) or superusers (S); (2) , the AVS of level-0 posts of users in v; (3) , the AVS of all replies given by users in v; (4) , the AVS of level-1 replies given by users in v; and (5) , the AVS of level-2+ replies given by users in v.
J Med Internet Res 2025;27:e56038
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For instance, Coulson and colleagues [39] studied the provision of social support in messages posted to a Huntington disease online community and reported that group members frequently offered informational (advice, referral, teaching, situation appraisal), emotional (relationship, confidentiality, affection, sympathy, validation/empathy, encouragement, prayer, relief of blame), network (access, presence, companionship, express willingness), and esteem (compliment, anchorage) support, while comparatively few
J Med Internet Res 2022;24(10):e34403
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As there had been previous little research exploring online support communities for TDs/TS, it was felt that the criteria outlined by Coulson et al [23] provided a methodical way to identify suitable and active online support communities for this study.
J Med Internet Res 2020;22(11):e18099
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Coulson et al [31] subsequently argued that the Capability, Opportunity, Motivation-Behavior (COM-B) model, a contemporary supratheory of behavior change, is better suited to understanding and describing behavior. The COM-B model proposes that for an individual to engage in a specific health-related behavior (B), they must have physical and psychological capability (C), physical and social opportunity (O), and automatic and reflective motivation (M).
JMIR Mhealth Uhealth 2020;8(8):e17193
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