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Dexamethasone-Induced Sarcopenia and Physical Frailty in Children With Acute Lymphoblastic Leukemia: Protocol for a Prospective Cohort Study

Dexamethasone-Induced Sarcopenia and Physical Frailty in Children With Acute Lymphoblastic Leukemia: Protocol for a Prospective Cohort Study

The chair will be positioned at a 3-m distance from a wall. The child will be asked to get up from the sitting position and walk “as fast as he can, without running” to the wall and touch a self-chosen picture on the wall, turn around without using the wall for support, walk back to the chair, and sit down. During the test verbal instructions will be repeated and encouragements are made. Time is recorded from the “go” cue to when the child is sitting down in the chair.

Emma Jacobine Verwaaijen, Annelienke van Hulst, Marta Fiocco, Annelies Hartman, Martha Grootenhuis, Saskia Pluijm, Rob Pieters, Erica van den Akker, Marry M van den Heuvel-Eibrink

JMIR Res Protoc 2022;11(4):e33517

A Study on Prevalence and Determinants of Ototoxicity During Treatment of Childhood Cancer (SOUND): Protocol for a Prospective Study

A Study on Prevalence and Determinants of Ototoxicity During Treatment of Childhood Cancer (SOUND): Protocol for a Prospective Study

The study protocol has been approved by the Clinical Research Committee of the Princess Máxima Center and by the Medical Research Ethics Committee Utrecht (Identifier 20-417/M), and has been registered in the Netherlands Trial Register (NL8881). Inclusion started on January 4, 2021. Participant recruitment and data collection are still ongoing. Patient inclusion will be finished on January 1, 2023. Ototoxicity is a serious adverse event of childhood cancer treatment.

Franciscus A Diepstraten, Annelot JM Meijer, Martine van Grotel, Sabine LA Plasschaert, Alexander E Hoetink, Marta Fiocco, Geert O Janssens, Robert J Stokroos, Marry M van den Heuvel-Eibrink

JMIR Res Protoc 2022;11(4):e34297

Health-Related Quality of Life in European Childhood Cancer Survivors: Protocol for a Study Within PanCareLIFE

Health-Related Quality of Life in European Childhood Cancer Survivors: Protocol for a Study Within PanCareLIFE

The detailed procedure is outlined by van den Berg et al [25]. Fertility impairment data on male survivors were unfortunately not available in most of the cohorts; therefore, we will analyze female survivors only. Hearing impairment data (yes or no) were collected together with information on HRQo L via questionnaires. Questions on hearing impairment differed slightly between data providers. Data on hearing impairment were not available for the Dutch cohort.

Gabriele Calaminus, Katja Baust, Claire Berger, Julianne Byrne, Harald Binder, Leonie Casagranda, Desiree Grabow, Martha Grootenhuis, Peter Kaatsch, Melanie Kaiser, Tomas Kepak, Kateřina Kepáková, Leontien C M Kremer, Jarmila Kruseova, Ales Luks, Claudia Spix, Marleen van den Berg, Marry M M van den Heuvel-Eibrink, Eline van Dulmen-den Broeder, Rahel Kuonen, Grit Sommer, Claudia Kuehni

JMIR Res Protoc 2021;10(1):e21851

Effect of Web-Based Versus Paper-Based Questionnaires and Follow-Up Strategies on Participation Rates of Dutch Childhood Cancer Survivors: A Randomized Controlled Trial

Effect of Web-Based Versus Paper-Based Questionnaires and Follow-Up Strategies on Participation Rates of Dutch Childhood Cancer Survivors: A Randomized Controlled Trial

In a recent study by Van den Berg et al [24], no differences were found in participation rates of female CCSs invited to complete either a paper- or a Web-based questionnaire. However, the CCSs who were invited through a paper-based questionnaire preferred completing the paper-based over the Web-based version. Our study confirms these results, although this study also showed that offering a paper-based questionnaire with a reminder contact ultimately does not influence the participation rate.

Ellen Kilsdonk, Eline van Dulmen-den Broeder, Helena J van der Pal, Nynke Hollema, Leontien C Kremer, Marry M van den Heuvel-Eibrink, Flora E van Leeuwen, Monique W Jaspers, Marleen H van den Berg

JMIR Cancer 2015;1(2):e11