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The Design, Development, and Usability Testing of an eHealth Program for Youths With Osteogenesis Imperfecta: Protocol for a 2-Phase User-Centered Mixed Methods Study

The Design, Development, and Usability Testing of an eHealth Program for Youths With Osteogenesis Imperfecta: Protocol for a 2-Phase User-Centered Mixed Methods Study

Stinson et al [28] designed and developed “Teens Taking Charge,” which is currently available for youths with juvenile idiopathic arthritis (JIA), cancer, hemophilia, or organ transplants. These multilayer programs contain self-guided, interactive, multicomponent modules that consist of disease-specific education, self-management strategies, and social support. To help encourage healthy behavior among youths, 2 modules specifically target parents.

Argerie Tsimicalis, Jennifer Stinson, Kelly Thorstad, Frank Rauch, Reggie Hamdy, Khadidja Chougui, Sofia Addab, Telma Palomo, Mitchell Bernstein, Noemi Dahan-Oliel, Louis-Nicolas Veilleux, Laura Massochin Nunes Pinto, Raissa Passos dos Santos

JMIR Res Protoc 2023;12:e47524