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Exploring the Needs of Adolescents With Sickle Cell Disease to Inform a Digital Self-Management and Transitional Care Program: Qualitative Study

Exploring the Needs of Adolescents With Sickle Cell Disease to Inform a Digital Self-Management and Transitional Care Program: Qualitative Study

All participants emphasized that transition should be a gradual process. Adolescents, parents, and HCPs felt that a digital self-management program could be very useful, and they were unanimous in their suggestions on features for a digital self-management tool. Their recommendations for informational topics and features to include are summarized in Table 4.

Yalinie Kulandaivelu, Chitra Lalloo, Richard Ward, William T Zempsky, Melanie Kirby-Allen, Vicky R Breakey, Isaac Odame, Fiona Campbell, Khush Amaria, Ewurabena A Simpson, Cynthia Nguyen, Tessy George, Jennifer N Stinson

JMIR Pediatr Parent 2018;1(2):e11058