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JMIR Pediatrics and Parenting (JPP) is a new sister journal of JMIR (the leading open-access journal in health informatics (Impact Factor 2016: 5.175), with a unique focus on technologies, medical devices, apps, engineering, informatics applications for patient/parent education in pediatrics, training/counselling and behavioral interventions, preventative interventions and clinical care for children and adolescent populations or child-parent dyads. JPP recognizing that pediatrics in the 21st century should be a participatory process, involving parents and informal caregivers, and using information and communication technologies.
As open access journal we are read by clinicians and patients alike and have (as all JMIR journals) a focus on readable and applied science reporting the design and evaluation of health innovations and emerging technologies. We publish original research, viewpoints, and reviews (both literature reviews and medical device/technology/app reviews).
During a limited period of time, there are no fees to publish in this journal. Articles are carfully copyedited and XML-tagged, ready for submission in PubMed Central.
Be a founding author of this new journal and submit your paper today!
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Background: Mobile health technologies have potential to improve self-management and care coordination of pediatric chronic diseases requiring complex care, such as cystic fibrosis. Barriers to implem...
Background: Mobile health technologies have potential to improve self-management and care coordination of pediatric chronic diseases requiring complex care, such as cystic fibrosis. Barriers to implementation have included a lack of support and infrastructure to use mHealth in the clinical microsystem. Coproducing mHealth technology with patients, clinicians, and designers may increase the likelihood of successful integration in the clinical setting. Objective: This study explored the development, adoption and integration of a new, coproduced mHealth platform (Genia) for the management of pediatric cystic fibrosis in Sweden. Methods: A retrospective, qualitative case study approach was used. The case was defined as the process of introducing and using Genia at the Pediatric Cystic Fibrosis Center at Skåne University Hospital in Lund, Sweden. Data sources included interviews, presentations, meeting notes, and other archival documents created between 2014-2017. To be included, data sources must have described or reflected upon the Genia adoption process. Iterative content analysis of data source materials was conducted by two qualitatively trained researchers to derive themes characterizing the mHealth clinical adoption process. Results: Four core themes characterized successful clinical integration of Genia at Lund: a cultural readiness to use mHealth; the use of weekly huddles to foster momentum and rapid iteration; engagement in incremental “Genia Talk” to motivate patient adoption; and a co-design approach toward pediatric chronic care. Conclusions: Principles of quality improvement, relational coordination, user-centered design, and coproduction facilitate the integration of mHealth technology into clinical care systems for pediatric CF care. Clinical Trial: Not applicable
Background: To support adolescents through transition from pediatrics to adult care, health care providers and families help teens to gain knowledge and develop self-management skills. Peer mentoring...
Background: To support adolescents through transition from pediatrics to adult care, health care providers and families help teens to gain knowledge and develop self-management skills. Peer mentoring can provide meaningful support and has been associated with improved health outcomes in other chronic conditions. Peer mentoring is an appealing way to provide support, but it is imperative to consider this unique group’s needs to ensure its success. Objective: To identify the peer mentoring wants and needs of youth with hemophilia in order to guide the development of a new program. Methods: A qualitative study interviewed a convenience sample of youth with hemophilia from two Canadian hemophilia treatment centers. Two iterative cycles of audio-recorded semi-structured individual interviews were conducted. Descriptive statistics and content analyses were used to organize data into categories that reflected emerging themes. Results: Twenty-three participants were recruited between the ages of 12 to 20 years (average age =14.91 ± 2.57). When asked about program design, participants weighed the importance of flexibility in delivery (e.g. online, in-person, texting), content (e.g. structured vs. unstructured), frequency of sessions, and length of the program. Participants identified some potential challenges such as scheduling issues, comfort level of disease discussion, and discordant mentor-mentee personality types. The program was viewed as a positive medium for connecting peers with hemophilia. Conclusions: Adolescents with hemophilia expressed interest in a peer mentoring program and provided valuable insight that will be applied in the development of a peer mentoring program for youth with hemophilia.
Background: Fever is an important vital sign and often the first one to be assessed in a sick child. In acutely ill children, caregivers are expected to monitor a child’s body temperature at home af...
Background: Fever is an important vital sign and often the first one to be assessed in a sick child. In acutely ill children, caregivers are expected to monitor a child’s body temperature at home after an initial medical consult. Fever literacy of many caregivers is known to be poor, and coupled with fever phobia, results in unnecessary healthcare utilization. In children with a serious illness, the responsibility of periodically monitoring temperature can add substantially to the already stressful experience of caring for a sick child. Objective: We conducted a pilot study to assess the feasibility of using the iThermonitor, an automated temperature measurement device, for continuous temperature monitoring in post-operative and post-chemotherapy pediatric patients. Methods: We recruited 25 patient-caregiver dyads from the Pediatric Surgery Department at the Massachusetts General Hospital (MGH), and the Pediatric Cancer Centers at the MGH & the Dana Farber Cancer Institute. Enrolled dyads were asked to use the iThermonitor device for continuous temperature monitoring over a 2-week period. Surveys were administered to caregivers at enrollment and at study closeout. Caregivers were also asked to complete a daily event monitoring log. The Generalized Anxiety Disorder-7 item (GAD-7) questionnaire was used to assess caregiver anxiety at enrollment and closeout. Results: 19 participant dyads completed the study. All 19 caregivers reported to have viewed temperature data on the study provided iPad tablet at least once per day, and more than a third did so 6 or more times per day. 74% of participants reported experiencing an out-of-range temperature alert at least once during the study. Majority of caregivers reported that it was easy to learn how to use the device, and that they felt confident about monitoring their child’s temperature with it. Only 21% of caregivers reported concurrently using a device other than the iThermonitor to monitor their child’s temperature during the study. Continuous temperature monitoring was not associated with an increase in caregiver anxiety. Conclusions: The iThermonitor is a highly feasible and easy to use device for continuous temperature monitoring in pediatric oncology and surgery patients. Clinical Trial: ClinicalTrials.gov Identifier: NCT02410252 (March 30, 2015)
Background: Pokémon GO illuminated the potential for mobile gaming apps to engage users and promote health. However, much work is needed to fully understand mechanisms through which digitally support...
Background: Pokémon GO illuminated the potential for mobile gaming apps to engage users and promote health. However, much work is needed to fully understand mechanisms through which digitally supported behavior change intervention operate, particularly for children and families. Objective: The goal of the current study was to explore the user-experience and changes in physical activity since playing Pokémon GO from a family perspective and within the greater context of family health. Specifically, factors related to engagement, user trends over time, and health were examined from the perspective of parents, adult caregivers, and children/teen Pokémon GO players. Methods: In January-February 2017, congruent with one of the largest anticipated Pokémon GO updates “Gen 2,” a retrospective pre-post design was used to investigate changes in physical activity in parents and adult caregivers since playing Pokémon GO. Additional descriptive data was collected via a survey that incorporated both closed and open-ended questions from parents and adult caregivers who were impacted by a child/teen that played Pokémon GO. Children/teens who played Pokémon GO were also invited to participate. Results: Self-reported data from 160 adults and 31 children were included in the final analyses (representing 129 adults and 31 parent-child dyads). Gameplay most often occurred between mothers and sons ≤10 years old. “Spending time together” was the most cited reason for gameplay by both adults (76.3%) and children (77.4%), followed by “it helped me go outdoors” (70.1%) for adults and “I am a Pokémon fan” (67.7%) by children. Playing Pokémon GO also helped to satisfy the top three identified family goals: having fun, spending more time/quality time with child, and exercising more. Unique to this population, open-ended responses indicated child gameplay could trigger both positive and negative emotional parent response. Boredom was the most cited reason for app disengagement, while in-app events most contributed to reengagement. For adults, there were significant increases in minutes spent in mild (M=23.36, SD = 66.02; t(97)=3.50, P=.001) and moderate (M=21.76, SD 53.04; t(130)=4.70, P=.000) physical activity per week after playing Pokémon GO. However, dyadic data indicated that child perceptions of parental influence on physical activity most significantly associated with parents who reported weekly strenuous physical activity both before (rs =.514, P=.003) and after (rs =.536, P=.003) Pokémon GO uptake. Conclusions: Pokémon GO transcended traditional understanding of digital health and uniquely reached across generations to engage users. Findings from this study highlight that, for a period of time, Pokémon GO fostered social and physical well-being for children and families through a multifaceted approach.