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Rare Diseases on the Internet: An Assessment of the Quality of Online Information

Frédéric Pauer, Svenja Litzkendorf, Jens Göbel, Holger Storf, Jan Zeidler, Johann-Matthias Graf von der Schulenburg

J Med Internet Res 2017;19(1):e23

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Shaping an Effective Health Information Website on Rare Diseases Using a Group Decision-Making Tool: Inclusion of the Perspectives of Patients, Their Family Members, and Physicians

Ana Babac, Svenja Litzkendorf, Katharina Schmidt, Frédéric Pauer, Kathrin Damm, Martin Frank, Johann-Matthias Graf von der Schulenburg

Interact J Med Res 2017;6(2):e23

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Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study

Svenja Litzkendorf, Tobias Hartz, Jens Göbel, Holger Storf, Frédéric Pauer, Ana Babac, Verena Lührs, Leena Bruckner-Tuderman, Franziska Schauer, Jörg Schmidtke, Lisa Biehl, TOF Wagner, J-Matthias Graf von der Schulenburg, Martin Frank

JMIR Res Protoc 2018;7(5):e112

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Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

Frédéric Pauer, Jens Göbel, Holger Storf, Svenja Litzkendorf, Ana Babac, Martin Frank, Verena Lührs, Franziska Schauer, Jörg Schmidtke, Lisa Biehl, Thomas OF Wagner, Frank Ückert, Johann-Matthias Graf von der Schulenburg, Tobias Hartz

Interact J Med Res 2016;5(3):e24

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Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study

Svenja Litzkendorf, Tobias Hartz, Jens Göbel, Holger Storf, Frédéric Pauer, Ana Babac, Verena Lührs, Leena Bruckner-Tuderman, Franziska Schauer, Jörg Schmidtke, Lisa Biehl, TOF Wagner, J-Matthias Graf von der Schulenburg, Martin Frank

JMIR Res Protoc 2018;7(9):e11248

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Communication Technology Preferences of Hospitalized and Institutionalized Frail Older Adults During COVID-19 Confinement: Cross-Sectional Survey Study

Guillaume Sacco, Sébastien Lléonart, Romain Simon, Frédéric Noublanche, Cédric Annweiler, TOVID Study Group

JMIR Mhealth Uhealth 2020;8(9):e21845

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Wrist-Based Accelerometers and Visual Analog Scales as Outcome Measures for Shoulder Activity During Daily Living in Patients With Rotator Cuff Tendinopathy: Instrument Validation Study

Samuel Larrivée, Frédéric Balg, Guillaume Léonard, Sonia Bédard, Michel Tousignant, Patrick Boissy

JMIR Rehabil Assist Technol 2019;6(2):e14468

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Global Changes and Factors of Increase in Caloric/Salty Food Intake, Screen Use, and Substance Use During the Early COVID-19 Containment Phase in the General Population in France: Survey Study

Benjamin Rolland, Frédéric Haesebaert, Elodie Zante, Amine Benyamina, Julie Haesebaert, Nicolas Franck

JMIR Public Health Surveill 2020;6(3):e19630

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Asynchronous Distance Learning of the National Institutes of Health Stroke Scale During the COVID-19 Pandemic (E-Learning vs Video): Randomized Controlled Trial

Mélanie Suppan, Loric Stuby, Emmanuel Carrera, Philippe Cottet, Avinash Koka, Frédéric Assal, Georges Louis Savoldelli, Laurent Suppan

J Med Internet Res 2021;23(1):e23594

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Embedding the Pillars of Quality in Health Information Technology Solutions Using “Integrated Patient Journey Mapping” (IPJM): Case Study

Stephen McCarthy, Paidi O'Raghallaigh, Simon Woodworth, Yoke Yin Lim, Louise C Kenny, Frédéric Adam

JMIR Hum Factors 2020;7(3):e17416

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