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Facebook Support Groups for Rare Pediatric Diseases: Quantitative Analysis

Facebook Support Groups for Rare Pediatric Diseases: Quantitative Analysis

Initiatives that aim to promote communication among affected families can use this analysis to learn about support group structures such as group sizes and privacy settings.

Sarah Catrin Titgemeyer, Christian Patrick Schaaf

JMIR Pediatr Parent 2020;3(2):e21694


Enhancing Privacy Controls for Patients via a Selective Authentic Electronic Health Record Exchange Service: Qualitative Study of Perspectives by Medical Professionals and Patients

Enhancing Privacy Controls for Patients via a Selective Authentic Electronic Health Record Exchange Service: Qualitative Study of Perspectives by Medical Professionals and Patients

A well-acknowledged definition of privacy was provided by the German Constitutional Court, which defined privacy as the right to informational self-determination [1], allowing individuals to determine for themselves (and thereby control) what personal information

Ala Sarah Alaqra, Simone Fischer-Hübner, Erik Framner

J Med Internet Res 2018;20(12):e10954


Rapid Deployment of a Free, Privacy-Assured COVID-19 Symptom Tracker for Public Safety During Reopening: System Development and Feasibility Study

Rapid Deployment of a Free, Privacy-Assured COVID-19 Symptom Tracker for Public Safety During Reopening: System Development and Feasibility Study

However, digital privacy remains a concern, and limited voluntary use of contact tracing approaches hampers the utility of these systems [20].Our multidisciplinary team has implemented systems using Georgetown University’s AvesTerra framework for privacy-assured

Seble G Kassaye, Amanda Blair Spence, Edwin Lau, David M Bridgeland, John Cederholm, Spiros Dimolitsas, JC Smart

JMIR Public Health Surveill 2020;6(3):e19399


Privacy-Related Context Information for Ubiquitous Health

Privacy-Related Context Information for Ubiquitous Health

With this study, we add knowledge to our earlier research by studying the privacy-related context information and by defining the corresponding components and their properties that support privacy management in ubiquitous health.Figure 1Data continuum and context

Antto Seppälä, Pirkko Nykänen, Pekka Ruotsalainen

JMIR Mhealth Uhealth 2014;2(1):e12


An Online, Moderated Peer-to-Peer Support Bulletin Board for Depression: User-Perceived Advantages and Disadvantages

An Online, Moderated Peer-to-Peer Support Bulletin Board for Depression: User-Perceived Advantages and Disadvantages

Thus, it is unclear if the findings would be applicable to a more heterogeneous target group with respect to age and background, and to a more established, open, and publicly available support group.

Kathleen Margaret Griffiths, Julia Reynolds, Sara Vassallo

JMIR Ment Health 2015;2(2):e14


A Web-Based Intervention for Social Media Addiction Disorder Management in Higher Education: Quantitative Survey Study

A Web-Based Intervention for Social Media Addiction Disorder Management in Higher Education: Quantitative Survey Study

They discovered that the at-risk group showed a significant upward time estimate bias when positively correlated with Facebook addiction scores.

Huseyin Dogan, Helmi Norman, Amen Alrobai, Nan Jiang, Norazah Nordin, Anita Adnan

J Med Internet Res 2019;21(10):e14834


Amputees’ Attitudes Toward Participation in Amputee Support Groups and the Role of Virtual Technology in Supporting Amputees: Survey Study

Amputees’ Attitudes Toward Participation in Amputee Support Groups and the Role of Virtual Technology in Supporting Amputees: Survey Study

Worldwide, peer support is a viable venue for acquiring and sharing this information. A support group is defined as a group of people with common experiences and concerns who provide emotional and moral support for one another [3].

Edward P Nathan, Sandra L Winkler

JMIR Rehabil Assist Technol 2019;6(2):e14887


Patients’ Willingness to Share Information in Online Patient Communities: Questionnaire Study

Patients’ Willingness to Share Information in Online Patient Communities: Questionnaire Study

In this context, we here establish a model of factors affecting patients’ willingness to share medical information combined with utility theory, which considers both the influence of online information support (OIS) and privacy concerns on patients’ willingness

Panpan Zhu, Jiang Shen, Man Xu

J Med Internet Res 2020;22(4):e16546